The Beginning

I have finally come to the realization that there is nothing wrong with letting people know that I do have epilepsy. I just hope that me writing some of the things that I have been through will help even one person see that they are not alone and that things can get better. I know it is a long long road and it is very hard to cope and deal with. When I was stuck not able to move for so long and had to rely on my cousin for everything. He had my apartment set up for me so that I had my medication right by me and I could reach it . I think I have been tried on every medication that is out there for epilepsy and seizures. The doctor had even mentioned to me about going to a short term facility and that thought scared the heck out of me. I was very very determined on getting back on my feet and getting some sort of my life back. And now a year later I am up mobile and able to go out. I have to be very careful of firetrucks, ambulances , police cars , hazard lights even on a car. I had a rough time at Christmas due to the Christmas lights and even some television shows. I find that one show that really bothers my epilepsy is Entertainment Tonight. I cant sit in the dark and watch television but am so lucky compared to what I was a year ago. A year ago I existed and today I am living again.

I hope to have other people post their stories about epilepsy as well as any questions that anyone may have.

Update – Nov 17 2011

I am so amazed at the number of people that have come and read my site. It makes me feel wonderful knowing that people not only enjoy my site, but that people are learning and educating themselves. The feedback I have received has been overwhelming to say the least. I thank you one and all for your comments, support and everything else.

 

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2 Comments on The Beginning

  1. alex gonzalez says:

    HELLO EVERYONE THANK YOU LISA FOR ALLOWING ME TO SHARE.I DON’T SUFFER FROM EPILEPSY MY MOM DOES AS A KID I DID NOT KNOW WHAT WAS HAPPENING TO HER SHE WOULD SHAKE AND KICK STIFF ARMS.IT WAS VERY SAD BUT NOW WE ALL KNOW HOW TO HANDLE IT WHEN IT HAPPENS.I HAVE MULTIPLE SCLEROSIS SINCE I WAS 14 YEARS YOUNG THE PAIN AND MY BRAIN FELT LIKE JELLO.I WAS PUT IN HOSPITAL FOR 13 DAYS THEY DID SPINAL TAP MRI BUT I WAS YOUNG AND DID NOT UNDERSTAND WHAT THE DR WAS SAYING MY FAMILY HAD MOVED BACK TO MEXICO BUT I STAYED WITH MY ELDER SISTER. AND SHE JUST THOUGHT THEY SAID I HAD A MENTAL PROBLEM LOL (I DO ) LOL.ON MARCH 8TH 2010 I HAD A STROKE WHILE WORKING AT AGE 44 AT TIME THE DR’S FOUND THE M.S AND WAS TOLD I HAVE PRIMARY PROGRESSIVE M.S AND TYPE 2 DIABETES AND WHOLE LIST OF OTHERS.I AM NOT MAD BECAUSE I HAVE M.S IT MADE ME A BETTER PERSON AND IT GAVE ME SO MANY TRUE FRIENDS.I DO WISH THEY FIND A CURE FOR IT I WOULD NEVER WHAT ANYONE TO HAVE TO SUFFER FROM THIS IT IS PAIN EVERYDAY EVERY WHERE AT TIMES I JUST DON’T KNOW WHERE THE PAIN IS IT JUST HURTS.THE ONE GREAT THING ABOUT MY PAIN IT TELLS ME I AM ALIVE.SORRY FOR SO MANY MISS SPELLED WORDS MY BRAIN IS NOT THE GREATEST. BUT I TELL YOU THIS STAY STRONG POSITIVE SMILE LOVE YOUR SELF AND EVERYONE AROUND YOU.THANK LISA ALEX

  2. Hello, I am just now reaching out to others who have family members that have epilepsy. My doctor that my daughter has a seizure disorder. Epilepsy is now considered in the medical community to relate to when seizures are passed down through genetics. In my daughter’s case, there is no close family member who has had seizures. Her seizure disorder happened as a result of falling ill to encephalitis. At the age of 6 she had her first seizure the night we were going to attend the parent teacher night for her to start first grade. She is now 13 and continues to have seizures in a series of cluster from every 7 to 14 days. When they start we can be fortunate and nothing happens after just one seizure. At other times, we find her enduring with 1-2 seizures per day over a period of 3-7 days. when the clusters come, her personality changes. She goes from happy to a very somber and quiet child. Her appetites decreases drastically. The doctor’s have tried various medications and she had a Vagus Nerve Stimulator placed in her chest 2 years ago and is now quickly coming up on her 3rd surgery because the last VNS might have been defective. The settings on her VNS had to be set so high that the battery ran out of her first after 2 years. The batteries are supposed to last 3 – 5 years. Health insurance has been nil because of my job loss but soon I will have health insurance for me and her again. My wife and I are still at a point of looking for the next potential source of using a natural remedy to get her seizures under control. I am going to look into a natural remedy called Epi-Still. There are supporting testimonies on Nature’s Remedy website from people who have begun to use and have seen significant improvements in their children’s or their own seizures becoming more controllable. I am going to continue to research this. The cost of this is about $30 a bottle and that is for a 50ml or approx. 3 ounce bottle. I am praying for good success in my research.

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