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FRUSTERATION LIKE I HAVENT HAD IN A LONG TIME!!!!!!!!

  • Posted on October 18, 2013 at 9:57 pm

 

Here I was put on a medication (patch) for my chronic pain and yes it has been working for my pain but we just have to get the proper dose of it now. I thought FANTASTIC I know that it isn’t going to take my pain down fully but at least it will cut it down to about 12 or so. Well my great luck as it is lol lol I ended up with a different form of medication the second set of patches were made by a different company, which in turn gave me sores that look like burns on my chest and shoulder. The very first patch done by the new company gave a little breakout of a rash. The second patch gave me a rash that looked like a burn on my chest. After I go to the doctor and he sees this you aren’t going to believe what happens. Just my luck and then tell me if I do or don’t have reasons to be frustrated.

 

 

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This is my chest the area where the patch was. This is the rash that looks like the burn and the following few pictures are of the same areas. It is so sore there is also an area on my shoulder that is the same and very sore as well.

 

 

 

 

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df6506f8-0c65-4c9b-b449-6930a8e990feThis one is from my left shoulder.

 

 

 

 

 

Okay so I had a doctor appointment and the doctor says to me NOT to use that patch anymore because I am having a reaction theres something in the glue that I am allergic to. We are trying another patch with another glue that hopefully I wont have a reaction to. He gives me a prescription and it is taken to the drugstore to be filled. I am on ODSP and they cover certain medications. I got a call many hours after the prescription was taken in to be filled. They inform me that the medication is not covered and it was going to cost me 117.00 for a 2 week supply. Well obviously I tell them I can’t afford that so they cant order it. The next day both me and my cousin were on the phone to different people to get things figured out. We got things figured out by noon. Once again I am thinking okay great the new medication is going to be delivered and I will be able to get that on my arm and my pain will be brought down some. Well by the time 6p.m. comes I am starting to wonder whats going on so I phone the pharmacy and they told me the delivery person was there at that time so my medication will be here within the next 5 to 10 minutes. I’m thinking okay great (remember the time frame here it is important) and once again I sit and wait, and wait and wait, and time is dragging on and on and on, it’s about 7p.m. now so I phone them again the answer I get is OH LISA WHAT TIME DID YOU SAY YOU WANTED IT DELIVERED BECAUSE IT DIDN’T GET PUT OUT FOR DELIVERY it was still sitting in the Rexall Pharma Plus Drugmart. (I will tell you by this time I can feel my blood pressure rising and I am in a bad mood ) They were going to TRY to get in touch with the delivery person because they SHOULD be able to get back there and pick up my medication and deliver it later.

I mean we had asked before 1 oclock in the afternoon to have the medication delivered and the delivery doesnt start til about 5 or 6. When I called at 6 p.m. and they told me my medication would be 5 or 10 minutes because the driver was there at that time. Then they ask me if I could have someone come and pick it up for me, by this time I am really getting cranky and ready to rant on them so I said NO THAT’S WHY ITS SUPPOSE TO BE DELIVERED!!!!   They asked me my address (meanwhile its on the tags for my prescription, then they ask me the closest intersection, and by this time I said THE SAME AS YOURS I AM RIGHT BEHIND THE LIQUOR  STORE.

I finally got the medication but even when I got it the delivery guy was NOT very friendly he kinda slapped it quickly in my hand and took off.  I can’t get over the fact that when Nina, Mildred, and there are a few others there that I don’t have any problems but when they are not there I always have problems or issues. I usually try to deal with Mildred or Nina, and there are a few other people in that drug store that are very very good people.

Now you can make your decisions as to if I had the right to be angry or not………………………….Thanks

 

 

 

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Many Years Ago An Experience Thanksgiving

  • Posted on September 22, 2013 at 1:31 am

This is something that happened many years ago when I was making our Thanksgiving Dinner. Yes at this time I was still allowed to use a stove and it’s a good thing because I had my children still at home.

 

Like I said I was making our Thanksgiving Dinner and wanted to make something different for desert, because the girls weren’t fussy on pumpkin pie, so I decided I would make them some rice crispy squares.I was wondering why the marshmallows were taking so long to melt, thinking about it now I should have know that I didn’t have the stove on. I finally realized that the stove wasn’t on so turned it on and got the rice crispy squares made and put away.

I had the turkey in the oven cooking and then started to peel the vegetables, which seemed to be taking me forever .We were  having potatoes carrots and turnip. I finally got them done and then went back into the living room, all I had to do was go back into the kitchen to check the turkey until I put the vegetables on. Everything seemed to be going okay, I went into the kitchen and checked on the turkey a few times, and back to relax a bit in the living room. Okay now time to go back and check on the turkey.

I got up, went into the kitchen got the oven door open and that is the last I remember. Then everything went wild, my oldest daughter called 911 and they hung up on her 2 times . She called back and was trying to get an ambulance to come because at this point I am starting to turn a bit blue apparently. My other daughter went running over to her Uncle’s house and because she was in the other room she didn’t know what happened she told her Uncle that I fell off the counter, he said what was she doing up on the counter. Then he came over to the house and took the phone from my daughter and they told him that they thought my daughter was playing with the phone. I didn’t come to until the ambulance drivers were at the house and they had my one arm out checking my blood pressure and I don’t know what the other paramedic was doing. When I woke up, it is some scary waking up and all I remember is seeing the ambulance crest, not knowing where you were or who the people were was some terrifying when coming out of a seizure.

More to come on this……..

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A Day in My Life

  • Posted on August 26, 2013 at 8:29 pm

For the people that don’t understand what it is like to have the health issues that are listed here on the site that I have.

I sit in my apartment day after day and I am not able to go out anywhere by myself, I want to go out so bad and sometimes feel like I am going to go crazy sitting here . I  have not been out in so long, I don’t even remember the last time  that I was out. I know I am not the only one that goes through this but how does everyone deal with this because I am having a hard time dealing with it………. I would like EVERYONE to think about this for a minute, what would you do if can’t go out anywhere , can’t use the stove have to have people cook for you, that you are in constant pain having to try to deal with not being steady on your feet so have to use a cane inside or take the chance of falling and use a walker outside.

THINK ABOUT OTHER PEOPLE LIKE THIS, THAT CANT GET OUT. IMAGINE IF YOU HAVE THE FLU AND ARE STUCK  INSIDE YOU GET FRUSTRATED, OTHER PEOPLE GET STUCK INSIDE AND CAN’T GET OUT FOR EVEN A CHANGE OF SCENERY AND TO SEE OTHER PEOPLE.

SORRY EVERYONE BUT THIS IS MY RANT FOR THE DAY!!!! USUALLY I AM  HAPPY AND SMILING AND JOKING AROUND BUT I AM SORRY TODAY I HAVE TEARS RUNNING DOWN MY CHEEKS AS WRITING THIS DUE TO ME BEING SO FRUSTRATED AND DEPRESSED AS FEEL LIKE THE WALLS ARE CLOSING IN ON ME BECAUSE  HAVEN’T  BEEN OUT IN SO LONG.

 

LISA

www.thelisapages.com

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Epilepsy Donation Receipt for July 2013

  • Posted on July 3, 2013 at 4:37 am

Here is the receipt for the money we have sent to support Epilepsy this month.

 

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Getting ready for November

  • Posted on October 30, 2012 at 5:15 pm

Getting ready for November

Ok we have to start Raising Awareness for Epilepsy. I am going to tell you a few things that have happened to me. I am not doing this for anyones sympathy or anyone to say that I want any attention because this is NOT the reason I am doing this. I have thought the best way to start to kick off November even though it’s a bit early is I am going to tell you a few things that have happened to me.

 With any hit in the head a person that has Epilepsy even if they have not had seizures before this a hit to the head can cause seizures to become active. If a person has a single seizure they don’t necessarily need an anticonvulsant. Usually doctors will put a person on an anticonvulsant medication after  a few seizures also some tests for example, an eeg catscan or mri. This is what I have been told by my neurologist.

When I was young we lived on a farm and I used to go out and help in the barn. I was not afraid of any of the cows, bulls etc. I was helping milk the cows and there were a couple of cows I was always allowed to milk by hand. We had a little stool and bucket and I would sit and milk the cow. Well as you can probably guess we either picked the wrong cow or she just didn’t want me to milk her this day, She brought up her back leg and I got a good swift kick in the head. Well the stool went one way and I went the other. I landed right in the gutter. Man oh man it stunk, everyone was in the house and they locked me out of the house once they made sure I wasn’t severely hurt other than having a nice sized goose egg on the side of my head and smelling from head to toe. My family got out the good old garden hose and hosed me down then I could go into the house and have a bath. Imagine the force that a huge cow had to kick me in the side of the head by the temple and leave a goose egg and very bad bruising .

I laugh about being kicked in the head now because I could just picture what I looked like after I was helped up and back to the house .

The second thing that I am going to tell you is a very serious head injury I had received.  I was living in Brampton and had been down to visit my grandmother who was going blind and needed someone to help her with things. I  had gone home layed down on the couch and had a few seizures. I remember starting to come out of the seizure and when I opened my eyes my cat was on the arm of the couch and all I could hear him doing was growling.  I then looked the way he was looking and growling. There were 3 young boys that had broke into my apartment and they had a baseball bat with them. The next thing I know I was getting beat with the bat. It seemed like the beating was going on forever I had massive bruising all over my face, head and arms. I was in total shock not to mention still being in the fog of coming out of seizures. Since I was beat with the bat in the head by the young kids my seizures have gotten a lot lot worse, After this beating is when I ended up with the Todd’s Paralysis, and my seizures have been out of control even with medication. I also know with this beating I had suffered brain damage, as is not uncommon when people have seizures.

 

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Great Phonecall on Friday before Thanksgiving

  • Posted on October 6, 2012 at 7:30 pm

Well I have been waiting for anywhere from 2 to 3 years to be able to try a medication called Lyrica. I have been tried on many many medications that is suppose to help with chronic pain as well as my seizures. (as most of you know I am epileptic.) I had been denied for Lyrica once from my family doctor and disability told me that I had to try other medications that were covered with their coverage first. Well this weekend with it being Thanksgiving weekend I couldn’t have gotten a better phone call from my neuroligists office. I was sitting watching television at approximately 5:30 p.m. when my phone rang and it was Dr. Borretts office. The first thing that went through my head was ohno I missed an appointment. The secretary proceeded to tell me that they had received a letter in regards to the Lyrica that my doctor had requested I be approved for. He has it down for 2 reasons to help control my Epilepsy and to help me with my chronic pain. That was the best Thanksgiving news I could have gotten as it is finally covered and not only is it just covered for the usual 1 year , but it is covered for me for life. I am sure I was smiling from ear to ear because this is a medication that has a lot of positive feedback about it as well it is used for fibermyalga. The doctors office was going to call the pharmacy and fax them the letter for me to be able to get this new medication. Well I waited a while then I called the pharmacy and apparently they didn’t receive a prescription but they did receive a cover letter telling them that it is indeed covered now for me. I just have to be patient and wait until Tuesday due to the Thanksgiving Holiday. I am hoping that anyone that has taken Lyrica can tell me of any of their side affects or issues that any have had. Have you had good bad or indifferent experiences with this medication?

I will be letting you know how I am tolerating this medication and how my seizures as well as my Chronic Pain is. This is going to work for me as this is the last one that I have the option of trying to help me with my Chronic Pain. This Thanksgiving I have finally got great news about this medication and if / when this works I will be able to get off some of my other medications as they wont be needed anymore which makes me more than happy.

Couldn’t have had a better Thanksgiving gift than getting my Lyrica covered for life from the Section 8 for special need of a certain medication……. so yes I am very happy even though this Thanksgiving I am spending alone ( me and my cat smokey)

 

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Donate coffee money…..

  • Posted on July 4, 2012 at 12:29 pm

As some may know Lisa (my cousin) is currently in hospital. I want to do something special for her. She really needs a window AC as this heat is really bad for her. Please donate coffee money to help raise money to cover cost and to pay the $35/mth her building charges for hydro. It was 29C in her apt today. Please help with coffee money as she is on disability and cannot afford an AC. Please send any donations through Paypal to david@dgbaker.com

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History of my health

  • Posted on June 14, 2012 at 3:49 pm

Many people suffer from depression, especially those with health issues. People that deal with health issues  deal in many different ways. I try to laugh and joke around about most of mine, for me this is a coping mechanism and not for people to think I take them lightly. I know how serious all of my health problems are and don##Q##t take chances on things. You can look at it like this the 2 different ways to deal or cope is either  to be happy or you can curl up in a corner and feel sorry for yourself and play the poor me routine.

I didn##Q##t realize just all the health issues I have had and will have for the rest of my life until I sat down and had to make a list for my new specialist. Now looking at this list I think holy cow what else could go wrong with me…… Well never mind don##Q##t answer that lol lol lol.

The list of my health issues are as follows :

Uterine Cancer (no follow up after Hysterectomy) age 24

Partial Hysterectomy at age 24

Epilepsy – Multiple classes of seizures (Started as a child)

Two operations on both knees (patella)

IBS (Irritable Bowel Syndrome)

Incontinence (tilted bladder – Bladder opening stretched 2-3 times as a child)

Gallbladder removed around age 30 (gallstones)

Appendix removed around age 15

Gangrenous removed age 15  – was wrapped around fallopian tube and ovary choking them off

Age 13 put on special diet for bowel blockage (very overly limited on what was allowed to eat)

No teeth due to extremely week enamel – cement from braces decayed the teeth – all teeth removed around age 23

Chronic Neurological Pain in Left Vulva – started by Bartholin Gland Abscess – Requiring 1 triage emergency surgery, another to remove excessive scar tissue and a 3rd to remove a small cyst on left labia

Alopecia – twice have had head hair fall out in clumps (within the past 3 years)

Todd’s Paralysis (loss of complete feeling – left arm only to total body from neck down) – 4 years ago

Vitalago – Primarily on face

Prone to infections especially in  open cuts/wounds

Have difficulty regulating body temperature a times

Cannot handle temps above 25C

Night sweats

Sleepwalking – Nocturnal Seizures (have opened/unlocked apt door and put things in the hall, put things in the fridge, have had falls that woke me up)

Barely get 3-4hrs sleep a night

Difficult to build muscle mass

Deaf in right ear – no cause known

Depression and have had suicidal thoughts in life

3 miscarriages

Open sores/wounds on legs (started as a red rash live hives, burning, hot to the touch, itchy) legs and feet blood red (Still ongoing with therapy)

Kicked in head by a cow (age 7)

Prone to falling – uncountable times of hitting head

Thyroid – had old doctor say body and brain don’t agree with each other (no clue what that meant)

Enlarged Red blood cells – no treatments given

Struck in head repeatedly with baseball while having seizure (home invasion)

Now I look at this and to be HONEST I want to cry but where will that get me right. Will it make anything better, No is the answer so laughing and joking is the way to go I believe.

The health issues that are in that list above some I have had and are gone and some I am stuck with for the rest of my life

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My need to rant and scream

  • Posted on June 3, 2012 at 7:11 pm

I just am so fed up anymore that I don’t know what is next. I have tried to laugh and joke around about my legs but I can’t as of yet. I usually joke around to deal with my health but the way I am feeling lately I have been very depressed because it seems like I get one thing started to straighten out and another thing starts up or I end up with something else.

Some people just don’t understand what I go through and some days you just want to give up. There are many days that I want to yell at the top of my lungs that NO BODY understands the hell I go through on a daily basis. I can not cook or clean up the apartment by myself and I just feel plain useless due to all of these things.

I have been all my life independent until I was beat in Brampton with a baseball bat. I was attacked in the head with the bat and ever since then my health has gone from bad to worse. I know that I am still lucky to be alive but maybe some people may be able to understand a bit better now what I go through and why lately I have gotten so discouraged and frustrated and just fed right up with everything in my daily life. I can not go out a anywhere I have to always have someone with me so I feel like a little kid needing a babysitter 24/7. Yes I have feeling in my body unlike a couple years ago, but with this pain sometimes I wish I didn’t because at least I wouldn’t feel the pain that I continue to go through.

My doctor is checking me for other health issues now as well as sending me to an Internist Doctor which are what as known as Puzzle Doctors. Their job is to explain what other doctors are having trouble explaining why. She will look at my entire health and try and find a reason for all these issues happening.

Please think of other people and try to help at least one person even if it is to make them smile as you never know how that could brighten up their day. I know if one of my online friends says “hi” I try to say hi back as soon as I can.

I have been fighting and fighting with things over my health for so long now it just makes me wonder if it is ever going to stop. You know I used to have a saying that “the Big Guy upstairs doesn’t give you more than you can handle, but I think I have had my limit and then some so I wish I would just get a break from more health issues coming out. The pain I am in constantly on a scale from 1 to 10 is usually about a 17 now and that is only from the surgery’s that went bad and the nerve damage. Then there is the pain in my legs with the burning and stinging from the nerves. I had the fan on the other day and even the little bit of wind from a fan drives me crazy with the pain in the legs. I have 2 toes that have been going numb more and more lately and when I go to the doctor again I have to tell him about this now.

I’ve had some so called “friends” make comments when I post things that are quite upsetting and have now made it that much more difficult for me to write. But a few people have said for me to continue with writing and screw everyone else. They don’t like it then they can move on.

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Venous Leg Ulcers and Home Care

  • Posted on June 3, 2012 at 7:08 pm

I have not been writing on my site lately as my health has been not the greatest, but I need to get back to writing here so here we go.    On top of ever other health issue I have, a new one has started which is starting to become by far the second most painful thing I have ever had to endure. Back in April I got what looked like hives on both my lower legs. They were very itchy and I had almost what looked like a red rash on them. Then the rash went from a rash to massive cuts and my legs were burning and stinging like they were on fire. After going to the doctor it was said that I had a blood infection which I was given 2 courses of anti-biotics for and we were bandaging the wounds. After two weeks though the wounds were getting worse and not healing, my doctor said continue bandaging and he would arrange for nursing care to come to address them. I now had what is called Venous Leg Ulcers caused by poor circulation. Venous Leg Ulcers

Not a couple days passed when my apt became grand central station. I had received a call from CCAC (Community Care Access Centre) I had done a phone evaluation with them and then it all started. I now have nurses coming in my place to change bandages every 3 days, an Occupational Therapist, and a Case worker. They have been amazing though and I am completely overwhelmed with all the support they have been giving me.

The nurses are still coming every 3 days and bandaging my legs as well as doing compression bandages on both lower legs. Every so often the “charge” nurse comes and re-evaluates everything and makes recommendations for changes to how the nurses are doing my legs.

Some really good things have come out of all this though (I know hard to believe), but the Occupational Therapist not only was there to deal with these Ulcer issues, she has been looking at my ENTIRE health and my daily living. They have been working closely with ODSP and helping to improve my daily living in any way possible. My O.T. has made the following improvements happen for me; I now have a bed-rail to help me in and out of bed, bath/shower handle that attaches to side of tub to help me in and out, these weird looking rails around the toilet so that I am not grabbing the sink to get up and down, I have a quad cane to help me get around and to steady my balance, and probably the biggest and most beneficial thing is my new lift chair. My O.T. was able to arrange for ODSP to cover $799 of the cost of a lift chair to help make me more comfortable and to help me get to a standing position. The problem is that lift chairs cost easily over $1,000+ and so we had to do come hunting for one, but David found one!! And it was just down the street from me from a place called Silver Cross. The chair was $800 and they delivered it that day for free. New Lift Chair

We are also now looking at getting other help for me with things like my Tenas (adult diapers), medical transportation for doctor appointments among other things.

I cannot express enough how much to thank CCAC, SilverCross, David and as well my ODSP worker for trying to make my life better.

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