You are currently browsing the Epilepsy Related category
Displaying 1 - 10 of 26 entries.

Many Years Ago An Experience Thanksgiving

  • Posted on September 22, 2013 at 1:31 am

This is something that happened many years ago when I was making our Thanksgiving Dinner. Yes at this time I was still allowed to use a stove and it’s a good thing because I had my children still at home.

 

Like I said I was making our Thanksgiving Dinner and wanted to make something different for desert, because the girls weren’t fussy on pumpkin pie, so I decided I would make them some rice crispy squares.I was wondering why the marshmallows were taking so long to melt, thinking about it now I should have know that I didn’t have the stove on. I finally realized that the stove wasn’t on so turned it on and got the rice crispy squares made and put away.

I had the turkey in the oven cooking and then started to peel the vegetables, which seemed to be taking me forever .We were  having potatoes carrots and turnip. I finally got them done and then went back into the living room, all I had to do was go back into the kitchen to check the turkey until I put the vegetables on. Everything seemed to be going okay, I went into the kitchen and checked on the turkey a few times, and back to relax a bit in the living room. Okay now time to go back and check on the turkey.

I got up, went into the kitchen got the oven door open and that is the last I remember. Then everything went wild, my oldest daughter called 911 and they hung up on her 2 times . She called back and was trying to get an ambulance to come because at this point I am starting to turn a bit blue apparently. My other daughter went running over to her Uncle’s house and because she was in the other room she didn’t know what happened she told her Uncle that I fell off the counter, he said what was she doing up on the counter. Then he came over to the house and took the phone from my daughter and they told him that they thought my daughter was playing with the phone. I didn’t come to until the ambulance drivers were at the house and they had my one arm out checking my blood pressure and I don’t know what the other paramedic was doing. When I woke up, it is some scary waking up and all I remember is seeing the ambulance crest, not knowing where you were or who the people were was some terrifying when coming out of a seizure.

More to come on this……..

facebooktwittergoogle_plusredditpinterestlinkedinmailby feather

Epilepsy Donation Receipt for July 2013

  • Posted on July 3, 2013 at 4:37 am

Here is the receipt for the money we have sent to support Epilepsy this month.

 

facebooktwittergoogle_plusredditpinterestlinkedinmailby feather

Getting ready for November

  • Posted on October 30, 2012 at 5:15 pm

Getting ready for November

Ok we have to start Raising Awareness for Epilepsy. I am going to tell you a few things that have happened to me. I am not doing this for anyones sympathy or anyone to say that I want any attention because this is NOT the reason I am doing this. I have thought the best way to start to kick off November even though it’s a bit early is I am going to tell you a few things that have happened to me.

 With any hit in the head a person that has Epilepsy even if they have not had seizures before this a hit to the head can cause seizures to become active. If a person has a single seizure they don’t necessarily need an anticonvulsant. Usually doctors will put a person on an anticonvulsant medication after  a few seizures also some tests for example, an eeg catscan or mri. This is what I have been told by my neurologist.

When I was young we lived on a farm and I used to go out and help in the barn. I was not afraid of any of the cows, bulls etc. I was helping milk the cows and there were a couple of cows I was always allowed to milk by hand. We had a little stool and bucket and I would sit and milk the cow. Well as you can probably guess we either picked the wrong cow or she just didn’t want me to milk her this day, She brought up her back leg and I got a good swift kick in the head. Well the stool went one way and I went the other. I landed right in the gutter. Man oh man it stunk, everyone was in the house and they locked me out of the house once they made sure I wasn’t severely hurt other than having a nice sized goose egg on the side of my head and smelling from head to toe. My family got out the good old garden hose and hosed me down then I could go into the house and have a bath. Imagine the force that a huge cow had to kick me in the side of the head by the temple and leave a goose egg and very bad bruising .

I laugh about being kicked in the head now because I could just picture what I looked like after I was helped up and back to the house .

The second thing that I am going to tell you is a very serious head injury I had received.  I was living in Brampton and had been down to visit my grandmother who was going blind and needed someone to help her with things. I  had gone home layed down on the couch and had a few seizures. I remember starting to come out of the seizure and when I opened my eyes my cat was on the arm of the couch and all I could hear him doing was growling.  I then looked the way he was looking and growling. There were 3 young boys that had broke into my apartment and they had a baseball bat with them. The next thing I know I was getting beat with the bat. It seemed like the beating was going on forever I had massive bruising all over my face, head and arms. I was in total shock not to mention still being in the fog of coming out of seizures. Since I was beat with the bat in the head by the young kids my seizures have gotten a lot lot worse, After this beating is when I ended up with the Todd’s Paralysis, and my seizures have been out of control even with medication. I also know with this beating I had suffered brain damage, as is not uncommon when people have seizures.

 

facebooktwittergoogle_plusredditpinterestlinkedinmailby feather

Great Phonecall on Friday before Thanksgiving

  • Posted on October 6, 2012 at 7:30 pm

Well I have been waiting for anywhere from 2 to 3 years to be able to try a medication called Lyrica. I have been tried on many many medications that is suppose to help with chronic pain as well as my seizures. (as most of you know I am epileptic.) I had been denied for Lyrica once from my family doctor and disability told me that I had to try other medications that were covered with their coverage first. Well this weekend with it being Thanksgiving weekend I couldn’t have gotten a better phone call from my neuroligists office. I was sitting watching television at approximately 5:30 p.m. when my phone rang and it was Dr. Borretts office. The first thing that went through my head was ohno I missed an appointment. The secretary proceeded to tell me that they had received a letter in regards to the Lyrica that my doctor had requested I be approved for. He has it down for 2 reasons to help control my Epilepsy and to help me with my chronic pain. That was the best Thanksgiving news I could have gotten as it is finally covered and not only is it just covered for the usual 1 year , but it is covered for me for life. I am sure I was smiling from ear to ear because this is a medication that has a lot of positive feedback about it as well it is used for fibermyalga. The doctors office was going to call the pharmacy and fax them the letter for me to be able to get this new medication. Well I waited a while then I called the pharmacy and apparently they didn’t receive a prescription but they did receive a cover letter telling them that it is indeed covered now for me. I just have to be patient and wait until Tuesday due to the Thanksgiving Holiday. I am hoping that anyone that has taken Lyrica can tell me of any of their side affects or issues that any have had. Have you had good bad or indifferent experiences with this medication?

I will be letting you know how I am tolerating this medication and how my seizures as well as my Chronic Pain is. This is going to work for me as this is the last one that I have the option of trying to help me with my Chronic Pain. This Thanksgiving I have finally got great news about this medication and if / when this works I will be able to get off some of my other medications as they wont be needed anymore which makes me more than happy.

Couldn’t have had a better Thanksgiving gift than getting my Lyrica covered for life from the Section 8 for special need of a certain medication……. so yes I am very happy even though this Thanksgiving I am spending alone ( me and my cat smokey)

 

facebooktwittergoogle_plusredditpinterestlinkedinmailby feather

PERFECT finally a site that wont trigger my seizures :)

  • Posted on September 19, 2012 at 3:23 am

Hey have you ever had problems finding the perfect website to buy or sell things? I always find a lot are too flashy for me and trigger my seizures… . Well if you have answered YES then I have found the site for you!

Whooooohoooooo finally a site that won’t trigger my photo epileptic seizures! This site also has online support (in a chat room ) you can go in and ask questions right there and then and the staff is more than willing to help. You can either go into flea chatters to ask your question or you can email them with the question. Everyone is very friendly without making you feel like any questions that you are asking are silly. Also due to my memory being bad from so many seizures you can ask the same question over and over again and they help you as if it was the very first time that you have asked the question. They will take as much time with you as you need and not try to rush you or avoid the questions. I am sooooo happy that I have found this site and with Christmas coming up and birthdays and the fact that I am not able to get out of the apartment very often I know where I am going to be getting a lot of my Christmas things this year as well as Birthday gifts (with hopefully the odd treat here and there for me heeheehee). They have a lot of categories to choose from and I have seen someone ask if a category can be added and they don’t have problems doing that either.

They are supportive and helpful to everyone and each month I think they are donating a certain percentage of the sites profit to a charity. There’s also a news area where they tell you what’s going on, and how to do things that show you for anyone that’s new to selling or buying things online. The method of payment is paypal as far as I know, so no credit cards are even required.

I know I will be selling anything that I decide to on here and I think its really worth going in and checking it out. They have everything from ebooks to other digital forms of selling and us females (and even guys I know where you can get the her in your life) some very nice jewelry. Also very good for any crafters out there they have beads and things for the crafters J. I have talked to the owners and they are going to be having live auctions coming too and those again won’t be flashy!

The sites name that is an awesome and very supportive of people with Epilepsy / Seizures as well as other disabilities is FleaBids Auction House @ http://fleabids.com/auction Check it out I can guarantee you will be glad you did!! I know I am super excited about it and all that it offers for everyone JJ .

facebooktwittergoogle_plusredditpinterestlinkedinmailby feather

Donate coffee money…..

  • Posted on July 4, 2012 at 12:29 pm

As some may know Lisa (my cousin) is currently in hospital. I want to do something special for her. She really needs a window AC as this heat is really bad for her. Please donate coffee money to help raise money to cover cost and to pay the $35/mth her building charges for hydro. It was 29C in her apt today. Please help with coffee money as she is on disability and cannot afford an AC. Please send any donations through Paypal to david@dgbaker.com

facebooktwittergoogle_plusredditpinterestlinkedinmailby feather

My need to rant and scream

  • Posted on June 3, 2012 at 7:11 pm

I just am so fed up anymore that I don’t know what is next. I have tried to laugh and joke around about my legs but I can’t as of yet. I usually joke around to deal with my health but the way I am feeling lately I have been very depressed because it seems like I get one thing started to straighten out and another thing starts up or I end up with something else.

Some people just don’t understand what I go through and some days you just want to give up. There are many days that I want to yell at the top of my lungs that NO BODY understands the hell I go through on a daily basis. I can not cook or clean up the apartment by myself and I just feel plain useless due to all of these things.

I have been all my life independent until I was beat in Brampton with a baseball bat. I was attacked in the head with the bat and ever since then my health has gone from bad to worse. I know that I am still lucky to be alive but maybe some people may be able to understand a bit better now what I go through and why lately I have gotten so discouraged and frustrated and just fed right up with everything in my daily life. I can not go out a anywhere I have to always have someone with me so I feel like a little kid needing a babysitter 24/7. Yes I have feeling in my body unlike a couple years ago, but with this pain sometimes I wish I didn’t because at least I wouldn’t feel the pain that I continue to go through.

My doctor is checking me for other health issues now as well as sending me to an Internist Doctor which are what as known as Puzzle Doctors. Their job is to explain what other doctors are having trouble explaining why. She will look at my entire health and try and find a reason for all these issues happening.

Please think of other people and try to help at least one person even if it is to make them smile as you never know how that could brighten up their day. I know if one of my online friends says “hi” I try to say hi back as soon as I can.

I have been fighting and fighting with things over my health for so long now it just makes me wonder if it is ever going to stop. You know I used to have a saying that “the Big Guy upstairs doesn’t give you more than you can handle, but I think I have had my limit and then some so I wish I would just get a break from more health issues coming out. The pain I am in constantly on a scale from 1 to 10 is usually about a 17 now and that is only from the surgery’s that went bad and the nerve damage. Then there is the pain in my legs with the burning and stinging from the nerves. I had the fan on the other day and even the little bit of wind from a fan drives me crazy with the pain in the legs. I have 2 toes that have been going numb more and more lately and when I go to the doctor again I have to tell him about this now.

I’ve had some so called “friends” make comments when I post things that are quite upsetting and have now made it that much more difficult for me to write. But a few people have said for me to continue with writing and screw everyone else. They don’t like it then they can move on.

facebooktwittergoogle_plusredditpinterestlinkedinmailby feather

Health issues coming out of the closet.

  • Posted on March 1, 2012 at 10:28 pm

First of all I want to say I have not done any posts lately due to my health being worse since Christmas. My seizures have been off the wall and I have been dealing with the soles of my feet now having fissures. My pain has been up as well (30 on a 1-10 scale) which just makes every other issue that much worse.

Now too today’s post, which I hope everyone takes something from it.

Health Issues ARE NOT asked for NOR wanted! Society as a whole needs to grow up and start being a bit more understanding when it comes to health issues and others!! This would make the world a much better place and happier place as well!!

Today I had to deal with another person that doesn’t understand Health issues and in fact was being just plain ignorant. This person though it would be fun to them and hurtful to others to tease about a health issue. I have been struggling a long time about doing a blog on this longer than I have about my seizures because people just don’t understand and it is criticized so much.  After today though (thanks to this persons ignorance) I have the courage to talk about it here.  Incontinence isn’t just a health issue that affects the elderly or babies. It can happen to anyone, any age. I have had to wear what they call “Adult diapers” and I truly hate them being called that. To this day just call them Tenas or Depends (both are brand names), using the word “diaper” is part of the problem with the stigmatism. Anyone that knows anything about seizures knows that incontinence comes hand in hand when you have seizures.

The ignorance and intolerance felt by people with disabilities is akin to gays and lesbians in the fact we end up “staying in the closet” with regards to our health in order to avoid ridicule, humiliation, bullying, teasing etc. Well, as you can tell, I’ve had enough and I am no longer afraid to talk and speak up about my health if only in the hopes that it helps teach others and help others not to be afraid of talking about health issues. To make matters worse I also have I.B.S (irritable bowel syndrome) as well as a bladder issue that I have had since I was younger. When I was younger I had to have the opening of my bladder stretched 3 times as it didn’t grow with me. This though has caused the incontinence to be worse over the years instead of better. So, when you put all of that on top of having seizures, having to wear Depends is something I have to live with daily.

For those that have what you may call “embarrassing” health issues, DO NOT be embarrassed. There is no shame in having health issues; it is just a fact of life. With help of true friends and family I have been able to come to terms better with my own health and learn not to hide it. At times I embrace it as it has made me a better person in the fact I do not judge others for any reason. Do I wish I didn’t have these health issues? Of course!! I’d have to be insane not too, but the fact remains I have health issues, I have “disabilities”, but I also now have strength and courage to take the hand I have been dealt and use it to reach out to others and maybe give them a hand to be stronger.

facebooktwittergoogle_plusredditpinterestlinkedinmailby feather

T.V. show Glee makes light of Epilepsy

  • Posted on February 28, 2012 at 7:08 pm

I’ve had Epilepsy for nearly 40 years and was appalled when a episode of Glee in Feb 2012 did a reference to faking seizures. In a scene trying to stop the wedding of two of the ‘kids’ on the show, the charactor played by Jeff Goldblum made a reference to buying time by faking an Epileptic Seizure.  What made matter worse was the theme of the episode was all about intollernce and acceptance. The moral of the story it seemed was accept others for the way they are, but if they have epilepsy it is still ok to poke fun of seizures. As I’ve stated before Epilepsy is a very serious illness and not one to be taken lightly. In Canada here we are passing a bill for Epilepsy Awareness which I hope some day will make people more aware of how serious it can be.

A lot of people think Epilepsy is a joke as they only see Gran Mal seizures in movies and online. There are over a dozen of high level type seizures with many different forms under that.  I sincerly hope there will be a time when we stop making light of epilepsy and seizures.

I will admit I do/did love the show Glee, but I am now questioning whether or not to continue watching it in light of this episode.

facebooktwittergoogle_plusredditpinterestlinkedinmailby feather

Seriousness of Epilepsy

  • Posted on December 1, 2011 at 9:19 pm

This post is to let everyone know that with any of my posts I in NO WAY am trying to make light of epilepsy and how serious it is. I do know how serious it is and do know that for every seizure I have I do have a chance of NOT coming out of it. I also know that with each seizure it does cause brain damage. I have made the choice to joke around and have a smile on my face even through the rough times. That is the way I deal with it Personally! Please do not think that epilepsy is a joke in any way shape or form. I choose NOT to have people feel sorry for me as this is not what I want.

facebooktwittergoogle_plusredditpinterestlinkedinmailby feather
Visit Us On TwitterVisit Us On FacebookCheck Our Feed