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Welcome to December!

  • Posted on December 1, 2011 at 8:28 pm

Welcome to December!
I would like to welcome everyone to December. This is a great month with Christmas and everything families getting together, celebrating the holidays and the New Year sneaking right around the corner. I would like to let everyone know how December affects me. You know the song “I wear my sunglasses at night” lol lol well that’s me cause I have to wear my sunglasses due to Christmas lights. Ya I know the nut in me is coming out again trying to joke around about my seizures, but hey what can you do you either have to make the best of it or be all down in the dumps. Believe me I do get down because this time of year I have to be very careful of going out, even in the apartment building I live in they have the flashing Santa on the door to outside and in the lobby windows. Therefore when going out I have sunglasses on and have to also close my eyes and be led outside lol lol lol….  Everyone that has the Christmas lights flashing etc. which makes it very hard on me, as well as others. I have some great friends tho that when I do go out they make sure that there are no flashing lights around me. Well other than camera’s but they have even asked people to be careful of their flashes because we all know that this time of year that’s another thing that people love to do. I am guilty of taking a ton of pictures too but I can never use a flash lol lol.

Please note that my joking about this (seizures) and me having seizures and epilepsy is only my way of dealing with it. By any means seizures is not a joking matter and is quite serious.

How about this December think about some other people with different health issues when putting your outside lights on and maybe for one year don’t have the flashers on?

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Vets Incompitance, Buried instead of Creamated

  • Posted on November 24, 2011 at 6:27 pm

Vets Incompitance, Buried instead of Creamated

I can not believe a vets incompitance! I have heard of someone loosing their family pet and wanting to get the family member (pet) creamated. They told the vet this and paid for the creamation and everything! A few days later the vet calls them back and tells them that there has been a mistake made, and their animal was buried instead of creamated. Then proceed to say that this has never happened before and they would reimburse the money for the creamation! But the family still has to pay for the buriel!! How disgusting is this?!!!!! This should NEVER EVER HAPPEN!!!!! For anyone who has animals they are just the same as a person except they have fur. We love our animals just like you would love an aunt, uncle. brother, sister or any human being. Would we accept this type of incompitence if the wrong person was put in the funeral home. I myself think that something needs to be done to make sure that this does not happen again to any other family and that this vet is held responcible for their actions. How would they react if it happened to them?
I do understand that they are human and that everyone makes mistakes, BUT this is NOT a MISTAKE that is ACCEPTABLE!! When they are buring animals or creamating they should make sure they are doing the proper animals. Also making sure that they don’t do this again!!!!
I am furious that a MISTAKE like this can be made!!!!!
For them to say that they could dig up the animal but there are no guarentees that they would dig up the proper animal and then creamate. Could you imagine getting a phonecall like this after loosing your family pet. Like I have said they are family members the only difference is that they have fur!!!!

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Smacked in the face again for being DISABLED and HONEST!!!!!!

  • Posted on November 17, 2011 at 10:51 pm

Smacked in the face again for being DISABLED and HONEST!!!!!!

The government has gone too far with restricting peoples meds !!!!!!!No photo I.D. No meds!!! I have found out the HARD way by calling to renew my meds! Finding out , with no previous warning by pharmacy or anything! This card in my opinion should be supplied for people on ODSP!!! Expecially because it is needed for certain meds. I have had O.D.S.P. refuse certain medications as well as items that are needed for my personal health and wellness, that are not covered under the drug plan. This is ridiculous with everything that is going on because yet again the INNOCENT and DISABLED that are TRUTHFUL are the ones being PUNISHED!!! I do not have any photo i.d. and it is very difficult for me to get out to get my meds never mind going downtown to get this card that I need. That is one thing and anyone knows that being on a tight budget, barely making it month to month the money tree out back HAS STOPPED GROWING. I am so discouraged and frusterated and upset with our GOVERNMENT as they have no clue what it is like to live the way people do that are disabled and in our situation.

My thoughts are the people that do the drugs and are addicts are going to get their drugs to feed their habit any way they can and it is going to be the innocent and the people that actually do need the meds that will suffer!!!!

Due to this being a NEW LAW. I have been on the phone with my pharmacy for a couple of days off and on now. The person that runs and is head of the pharmacy knows all my health issues and I just got off the phone yet again from them.(Not the main person) They said they can not release my meds to someone that the perscription does not belong to. I am UNABLE to get over to the pharmacy and the main person at the pharmacy knows this but now we are having another fight on our hands. Can this ever stop with the frusteration and its like if I could get there and get the meds and was fine then I wouldnt need the damn meds in the first place.

I AM SO DISGUSTED WITH THE WAY THINGS ARE RIGHT NOW IT ISNT FUNNY! THE PEOPLE THAT CANT GET OUT TO GET THEIR MEDS AND USUALLY HAVE SOMEONE PICK THEM UP, THE PHARMACY CAN NOT GIVE THEM OUT TO!!!!!!!!

 

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Everyone complained about Glee Episode

  • Posted on November 10, 2011 at 5:27 pm

Everyone complained about Glee Episode

 

I seen the latest episode of Glee and really don’t understand why everyone was so upset about it as I think it was very good showing the teens that there are pro’s and cons to teens having sex. It also had more than the sexual part of it. I found the young lad thats in the wheelchair (Artie Abrams) when he was talking it hit very very close to home. I know it is just a television show but his comments about being in the chair etc. He was explaining that with being in a chair you never feel self sufficient. Well that doesn’t just go for people in wheelchairs, it goes for other health issues as well and he couldn’t have said it better. Sometimes even just little things that you are able to do may not seem like much to others but it is a big deal. He said sometimes people worry about saying the wrong thing etc. and I do know that sometimes my friends don’t know what to say or how to say things but even a simple hello, how are you doing means more than anything. It could be when your having a bad day and it could make more of a difference than anyone realizes.

 

My 4 walls don’t talk to me very much and my cat on the other hand is too mouthy, lol lol, but a friend talking to me even bout the weather or their problems would mean so much sometimes. Sometimes I get told I am a nut, I do joke around a lot, but that is my way of coping with things when I am having rough times, may not be right, but thats how I do it.

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Cooking and Safety

  • Posted on November 8, 2011 at 10:30 pm

I LOVE to cook and haven’t been able to because of safety. There have been a few times I have ignored smokey (who is my seizure awareness cat). Also there have been times that I have thought that my stove was turned off before going to lay down and get safe, but I was too far into the start of the seizure episode. One time I was using the stove and I had thought that my stove was off, I went to lay down and when I came out of the seizure I had a plastic spatula that was too close to the burner and it was actually stuck to the burner when I came to after the seizure.

I have been using my slowcookers as well as my microwave for things when I am not able to have meals cooked for me. I feel aweful because it is not fair to someone to cook for me DAILY. It is bad when you feel like you are always having to be babysat for things. Like I have said in the beginning I love to cook and would love to be able to start cooking again, but to do that I have to get some of my other health issues under more control for example my chronic pain, swelling in legs and feet. These other health issues set off my seizures all of the time and sometimes I don’t realize how bad I actually am at times and find out later by being told. I try to do things and focus and push through when I am feeling bad instead of listening to my body and going to lay down, which I have to stop doing. I do wait too long a lot of times and after the fact is when I say ya I should have gone to lay down. I have a great cookbook that is for slowcookers which kinda gives me back that feeling of cooking (although not the same as using stove/oven lol ) it is this one, 470 Crockpot Recipes and that is what I use it has tons of recipies that are awesome. I bought it online as it is an ebook and would recommend it to anyone looking for slowcooker recipies because you can do anything in a slowcooker. It had everything from main meals to desserts, which I thought was awesome cause I didn’t know you could do desserts in a slowcooker.  This ebook has helped emensely to get me to feel a bit more self-sufficient and cook sometimes for myself. If any has issues with cooking or just likes using slow cookers than I would get this book.

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Sentenced to life

  • Posted on November 4, 2011 at 2:15 pm

So, my rent is going up and its due to hydro etc going up so much, the government has to think about this with the people on disability as I have already given up my housephone to try to cut my costs and there is no other way i can cut costs.  I don’t get out and my only social life is the computer and people that I have met online. I talk to my friends this way and if I cut my internet I will not have any social life and this is not fair to people on disability.

I am not just speaking for me but for everyone on disabilitiy that are in the same position as I am that have cut costs every where they can to make things better. I am paying 824.00 now for my rent alone and only get 464.00 as my allowance for rent, anything above that comes out of my liviing expenses. I am not able to walk very far and have other health issues as I have written on my blogs. I have been trying to cope as is and this raising my rent just makes me want to put up my hands and say now what am i going to do.

A lot of people would say well why not move then to a cheaper apartment. What they don’t understand is then I would have to get a moving company to help me move and where am I going to go, and to be able to find a place that is safe and close enough to all the grocery stores, as well as the drug store. I have it right by me because as it is now I can never go out by myself and when I do go out I have to use a walker a lot of the time. I do not expect to have a luxurious life as I know it comes from the government but would like enough money each month to buy groceries and to pay for my expenses. I do not get other personal items covered by the ODSP in which I need as it is. Therefore need to save the money I have to last til the end of the month for special items that I need. I have sent away for samples of things to help me and do use coupons when I can.

I feel at times like I am being punished for being disabled, almost like being in a jail as all I get to see is the same 4 walls. I do have a cat and my cat is an epilepsy awareness cat. I do not have enough money per month to pay my bills and believe me I don’t have anything extravagant, and don’t expect an extravagant lifestyle, but I do think that I should be able to pay my bills and buy enough food to last me a month, as well as my other personal health issues requirements. I would even love to have the other issues added to the drug card as this would help me. I do not spend my money on things that are not needed to live. This month for example, I was looking to get a descent grocery shop as am very low on food. My groceries this month I was only able to spend not even 40.00 for groceries…Now how does that last a month!!!!!!!

I’ve been looking at the food bank, BUT because I cannot get out easily it is not an option as the don’t deliver and for me to get there is not feasible. Let alone also the cost of the TTC to do it, which I have to save every penny I can for travelling to doctor appts which is not a fun time, but that’s another story I will be writing about.

So here I am, sentenced to life.

 

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Government Launches Review of the Registered Disability Savings Plan

  • Posted on November 4, 2011 at 1:26 pm

On Oct 23rd 2011 the Honorable Jim Flaherty announced a Federal review of the RDSP program. In this they have asked for people to comment on it. Below is the email I sent with regards to the RDSP review.

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I am a family member of persons on Ontario Disability. First let me state that I think the RDSP is a great idea but I do and have seen the following issues;

1. A lot of people on disability do not have enough ID for banks to even open an account (seen this with BMO and my cousin). My cousin does not have a drivers license (can’t), does not have a passport, and still has the red/white ohip card. She does not have any form of “legal” photo ID. This needs to be addressed on many government levels. A nationwide government issues photo disability ID needs to be developed.

2. The vast majority of people on disability are afraid of losing or having their provincially provided disability cut for having the RDSP. Even though this would not happen, the government needs to understand one very crucial thing. The workers/staff of things like ODSP go out of their way to make people on disability afraid of being cut-off. This is not an exaggeration as I have seen this first hand with several family members and friends on ODSP. I know my cousin is very scared of opening an RDSP as the prospect of losing her ODSP frightens her to death.

3. People on ODSP for example don’t have money to contribute to RDSP and here is why. For people like my family living in Toronto – (courtesy CHMC Rental Market Reports – 2010)
Average Rent in Toronto
Bachelor Apt – $758/mth
1 Bdrm Apt – $926/mth
ODSP benefits for a single person: $930/month – That includes $464 for shelter.
**As of Jan 2012, my cousins rent for a 1 Bdrm is going up to $824/mth they say due to higher hydro costs etc… YET her ODSP does not increase to cover this. How can that be fair or right?

As you can see people on disability don’t even have enough money to get by each month. This is a MAJOR issue that needs Government attention.

Even though the RDSP is a wonderful thing to have, a lot of people on disability can’t and won’t take advantage of it for several reasons. Disability as a whole needs to be addressed as a National issue. I would request that the Honorable Jim Flaherty look at making Disability a Federal issue to be dealt with and removed from the Provinces. Each province deals with disability differently while the persons in Canada with disability are no different province to province. Our great Country is a Country that prides itself on helping other countries with their impoverished, yet we ignore our own that desperately need our help. Our disabled did not ask to be disabled nor do they wish to be disabled, yet we treat them like some blithe on our system. Unlike Welfare recipients our disabled have no choice BUT to be on assistance as most cannot work anywhere. I would like to put a challenge to our leaders – to ensure all people on disability in all provinces get at the very least the same amount of money as a Minimum Wage 35.5hr/wk worker gets and fix their health care and special diets/needs allowances. Is our government aware that because someone is on disability they are not entitled to the same health care as everyone else? This is backed up in facts, for example, certain meds that would help people in my family lead a more normal life they cannot get because ODSP refuses to cover it.

I applaud Mr. Flaherty for what he is trying to achieve, but I feel there are some glaring fundamental issues that need to be addressed before the RDSP program can work properly.

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Epilepsy and Holiday Awareness

  • Posted on November 1, 2011 at 7:25 pm

I am going to do the one bout “holidays” etc and how even tho its a great occasion for everyone people with Epilepsy will probably dred them. I know I do.. I would like to have any people that go to bars think about the lighting and strobe lights when they go into a bar. I know there are a lot of people that say “WHAT DO YOU EXPECT WHEN YOU GO TO A BAR” but seriously this is a medical condition that no one can help and certainly no one has asked to have epilepsy. Just because I have epilepsy doesn’t mean I have to stay at home and can’t go out and enjoy things the way everyone else does. I think that it is about time that bar owners realize that the lighting can cause people to have issues with your health. The more they know the better it is. They have to be aware of the risks people are taking and how many people can not go into their establishment so not only is it not fair to the people that would like to go into their bars etc but they are loosing money on loosing customers.

It is sad that if you bring it up as they will loose money they are more apt to change things.

Halloween: I really enjoy going out to bars on Halloween and seeing everyone dressed up in costumes. The problem is there are a lot of bars that have either flashing lights or the strobe lights on. I don’t like drawing attention to myself and asking them to turn the lights off or not to turn the lights on. I have to call ahead or ask some people that go to the certain bars if they have the lights on and if they are, that means I can’t go to the bar. Photo Epilepsy there are a lot of different variants of photo epilepsy. I have it so bad that even the flashing lights of a car can set me into a seizure. I am not saying or expecting people to go out and not have a good time, or to have pitty or feel sorry for me because that is the last thing that I want. I do not like pitty parties.

Please make people aware that even Halloween and some of the flashing lights are dangerous for others.

Really do you need the lights on strobe or flashing to have a good time when it can help someone just get out. I am asking people to make aware some bars or establishments in your area of these simple things that can give someone a night out and way to have a good time as well as you .

 

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Epilepsy awareness month

  • Posted on November 1, 2011 at 1:33 pm

Today marks the beginning of epilepsy awareness month! What are you doing Today, November 1st, to show your support? Let us know!

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Respect!!!!

  • Posted on October 30, 2011 at 7:17 pm

I don’t understand how people can not respect property of where they live and things that they do not own. The people here spent the whole day yesterday painting our hallway and then last night someone had the nerve to once again smash in the glass in our hallway door. You know they are really trying to watch who moves in here and be careful with things like that but I really think that they would respect things more if it was there things being smashed………you have to have respect for others as well as their property.

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