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NOVEMBER IS EPILEPSY AWARENESS MONTH

  • Posted on November 1, 2013 at 3:42 pm

NOVEMBER IS EPILEPSY AWARENESS MONTH

 

 

I would like to thank Fleabids for featuring my store for Store of the Month . I am so glad that theres finally a site online that I never have to worry about any flashing as they are an EPILEPSY AWARENESS site. They are the best site. If there are any issues or you don’t understand anything they help you and have a friendly customer service. Check it out Fleabids Store of the Month

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FRUSTERATION LIKE I HAVENT HAD IN A LONG TIME!!!!!!!!

  • Posted on October 18, 2013 at 9:57 pm

 

Here I was put on a medication (patch) for my chronic pain and yes it has been working for my pain but we just have to get the proper dose of it now. I thought FANTASTIC I know that it isn’t going to take my pain down fully but at least it will cut it down to about 12 or so. Well my great luck as it is lol lol I ended up with a different form of medication the second set of patches were made by a different company, which in turn gave me sores that look like burns on my chest and shoulder. The very first patch done by the new company gave a little breakout of a rash. The second patch gave me a rash that looked like a burn on my chest. After I go to the doctor and he sees this you aren’t going to believe what happens. Just my luck and then tell me if I do or don’t have reasons to be frustrated.

 

 

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This is my chest the area where the patch was. This is the rash that looks like the burn and the following few pictures are of the same areas. It is so sore there is also an area on my shoulder that is the same and very sore as well.

 

 

 

 

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df6506f8-0c65-4c9b-b449-6930a8e990feThis one is from my left shoulder.

 

 

 

 

 

Okay so I had a doctor appointment and the doctor says to me NOT to use that patch anymore because I am having a reaction theres something in the glue that I am allergic to. We are trying another patch with another glue that hopefully I wont have a reaction to. He gives me a prescription and it is taken to the drugstore to be filled. I am on ODSP and they cover certain medications. I got a call many hours after the prescription was taken in to be filled. They inform me that the medication is not covered and it was going to cost me 117.00 for a 2 week supply. Well obviously I tell them I can’t afford that so they cant order it. The next day both me and my cousin were on the phone to different people to get things figured out. We got things figured out by noon. Once again I am thinking okay great the new medication is going to be delivered and I will be able to get that on my arm and my pain will be brought down some. Well by the time 6p.m. comes I am starting to wonder whats going on so I phone the pharmacy and they told me the delivery person was there at that time so my medication will be here within the next 5 to 10 minutes. I’m thinking okay great (remember the time frame here it is important) and once again I sit and wait, and wait and wait, and time is dragging on and on and on, it’s about 7p.m. now so I phone them again the answer I get is OH LISA WHAT TIME DID YOU SAY YOU WANTED IT DELIVERED BECAUSE IT DIDN’T GET PUT OUT FOR DELIVERY it was still sitting in the Rexall Pharma Plus Drugmart. (I will tell you by this time I can feel my blood pressure rising and I am in a bad mood ) They were going to TRY to get in touch with the delivery person because they SHOULD be able to get back there and pick up my medication and deliver it later.

I mean we had asked before 1 oclock in the afternoon to have the medication delivered and the delivery doesnt start til about 5 or 6. When I called at 6 p.m. and they told me my medication would be 5 or 10 minutes because the driver was there at that time. Then they ask me if I could have someone come and pick it up for me, by this time I am really getting cranky and ready to rant on them so I said NO THAT’S WHY ITS SUPPOSE TO BE DELIVERED!!!!   They asked me my address (meanwhile its on the tags for my prescription, then they ask me the closest intersection, and by this time I said THE SAME AS YOURS I AM RIGHT BEHIND THE LIQUOR  STORE.

I finally got the medication but even when I got it the delivery guy was NOT very friendly he kinda slapped it quickly in my hand and took off.  I can’t get over the fact that when Nina, Mildred, and there are a few others there that I don’t have any problems but when they are not there I always have problems or issues. I usually try to deal with Mildred or Nina, and there are a few other people in that drug store that are very very good people.

Now you can make your decisions as to if I had the right to be angry or not………………………….Thanks

 

 

 

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Many Years Ago An Experience Thanksgiving

  • Posted on September 22, 2013 at 1:31 am

This is something that happened many years ago when I was making our Thanksgiving Dinner. Yes at this time I was still allowed to use a stove and it’s a good thing because I had my children still at home.

 

Like I said I was making our Thanksgiving Dinner and wanted to make something different for desert, because the girls weren’t fussy on pumpkin pie, so I decided I would make them some rice crispy squares.I was wondering why the marshmallows were taking so long to melt, thinking about it now I should have know that I didn’t have the stove on. I finally realized that the stove wasn’t on so turned it on and got the rice crispy squares made and put away.

I had the turkey in the oven cooking and then started to peel the vegetables, which seemed to be taking me forever .We were  having potatoes carrots and turnip. I finally got them done and then went back into the living room, all I had to do was go back into the kitchen to check the turkey until I put the vegetables on. Everything seemed to be going okay, I went into the kitchen and checked on the turkey a few times, and back to relax a bit in the living room. Okay now time to go back and check on the turkey.

I got up, went into the kitchen got the oven door open and that is the last I remember. Then everything went wild, my oldest daughter called 911 and they hung up on her 2 times . She called back and was trying to get an ambulance to come because at this point I am starting to turn a bit blue apparently. My other daughter went running over to her Uncle’s house and because she was in the other room she didn’t know what happened she told her Uncle that I fell off the counter, he said what was she doing up on the counter. Then he came over to the house and took the phone from my daughter and they told him that they thought my daughter was playing with the phone. I didn’t come to until the ambulance drivers were at the house and they had my one arm out checking my blood pressure and I don’t know what the other paramedic was doing. When I woke up, it is some scary waking up and all I remember is seeing the ambulance crest, not knowing where you were or who the people were was some terrifying when coming out of a seizure.

More to come on this……..

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Smokey

  • Posted on August 29, 2013 at 2:31 am

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A Day in My Life

  • Posted on August 26, 2013 at 8:29 pm

For the people that don’t understand what it is like to have the health issues that are listed here on the site that I have.

I sit in my apartment day after day and I am not able to go out anywhere by myself, I want to go out so bad and sometimes feel like I am going to go crazy sitting here . I  have not been out in so long, I don’t even remember the last time  that I was out. I know I am not the only one that goes through this but how does everyone deal with this because I am having a hard time dealing with it………. I would like EVERYONE to think about this for a minute, what would you do if can’t go out anywhere , can’t use the stove have to have people cook for you, that you are in constant pain having to try to deal with not being steady on your feet so have to use a cane inside or take the chance of falling and use a walker outside.

THINK ABOUT OTHER PEOPLE LIKE THIS, THAT CANT GET OUT. IMAGINE IF YOU HAVE THE FLU AND ARE STUCK  INSIDE YOU GET FRUSTRATED, OTHER PEOPLE GET STUCK INSIDE AND CAN’T GET OUT FOR EVEN A CHANGE OF SCENERY AND TO SEE OTHER PEOPLE.

SORRY EVERYONE BUT THIS IS MY RANT FOR THE DAY!!!! USUALLY I AM  HAPPY AND SMILING AND JOKING AROUND BUT I AM SORRY TODAY I HAVE TEARS RUNNING DOWN MY CHEEKS AS WRITING THIS DUE TO ME BEING SO FRUSTRATED AND DEPRESSED AS FEEL LIKE THE WALLS ARE CLOSING IN ON ME BECAUSE  HAVEN’T  BEEN OUT IN SO LONG.

 

LISA

www.thelisapages.com

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Seizures and How they affect you….

  • Posted on December 19, 2012 at 5:13 am

Im Brittany im 20 years old and im Lisa’s daughter, growing up i had seizures….. And watching what my mother went through was pretty rough to, alot of stuff has happened in her past, making her seizures alot worse then they used to be, my last seizure i had was in grade 7. I do not remember much except, being made fun of alot, getting pulled out into the hall way in the middle of the class and having a mini seizure, Kids and People in general can be very very cruel…

Brittany

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Living a life with pain

  • Posted on December 12, 2012 at 5:03 am

For me I would love to have a minute , hour, or day with lessened pain. My pain on a scale from 1 to 10 is a CONSTANT 17 even with the medications I am on. When I was in the hospital I had a nurse come in and ask me a bunch of questions. She could not understand that there was nothing to see that its NERVE damage from 3 surgeries and each surgery the pain got worse. She was almost begging me to see. I had explained that with vulvodynia you can not see anything. I have been to many doctors and there is nothing that they can do for me. The pain is draining, you get so tired and it affects your full system. My heart rate has gone up because of the pain and has been very very high. There are a lot of people that don##Q##t understand what constant chronic pain is. Theres no way to explain it other than have something like a needle or pin stabbing you constantly 24/7. I would love for a Christmas gift for just a little bit of pain relief. I dont expect to get totally rid of the pain but to maybe get it down to like a 7. I do have a high pain tolerance as well I have had many doctors tell me that. Even with my legs the doctors have said a lot of people would be in constant tears but to me my vulvodynia pain is a lot worse than the leg wound pain. I would say that pain on a scale of 1 to 10 is a 4. Add both of the pains together and it is AGONY every day all day long and every night as well….. I wish some people would try to understand and quit saying OH YOUR JUST ON TOO MUCH MEDICATION that you shouldnt take the meds. Until they WALK IN MY SHOES FOR AN HOUR, AS I WOULDNT WANT ANYONE TO HAVE THIS PAIN NOT EVEN MY WORST ENEMY.
THANKS
Lisa

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Getting ready for November

  • Posted on October 30, 2012 at 5:15 pm

Getting ready for November

Ok we have to start Raising Awareness for Epilepsy. I am going to tell you a few things that have happened to me. I am not doing this for anyones sympathy or anyone to say that I want any attention because this is NOT the reason I am doing this. I have thought the best way to start to kick off November even though it’s a bit early is I am going to tell you a few things that have happened to me.

 With any hit in the head a person that has Epilepsy even if they have not had seizures before this a hit to the head can cause seizures to become active. If a person has a single seizure they don’t necessarily need an anticonvulsant. Usually doctors will put a person on an anticonvulsant medication after  a few seizures also some tests for example, an eeg catscan or mri. This is what I have been told by my neurologist.

When I was young we lived on a farm and I used to go out and help in the barn. I was not afraid of any of the cows, bulls etc. I was helping milk the cows and there were a couple of cows I was always allowed to milk by hand. We had a little stool and bucket and I would sit and milk the cow. Well as you can probably guess we either picked the wrong cow or she just didn’t want me to milk her this day, She brought up her back leg and I got a good swift kick in the head. Well the stool went one way and I went the other. I landed right in the gutter. Man oh man it stunk, everyone was in the house and they locked me out of the house once they made sure I wasn’t severely hurt other than having a nice sized goose egg on the side of my head and smelling from head to toe. My family got out the good old garden hose and hosed me down then I could go into the house and have a bath. Imagine the force that a huge cow had to kick me in the side of the head by the temple and leave a goose egg and very bad bruising .

I laugh about being kicked in the head now because I could just picture what I looked like after I was helped up and back to the house .

The second thing that I am going to tell you is a very serious head injury I had received.  I was living in Brampton and had been down to visit my grandmother who was going blind and needed someone to help her with things. I  had gone home layed down on the couch and had a few seizures. I remember starting to come out of the seizure and when I opened my eyes my cat was on the arm of the couch and all I could hear him doing was growling.  I then looked the way he was looking and growling. There were 3 young boys that had broke into my apartment and they had a baseball bat with them. The next thing I know I was getting beat with the bat. It seemed like the beating was going on forever I had massive bruising all over my face, head and arms. I was in total shock not to mention still being in the fog of coming out of seizures. Since I was beat with the bat in the head by the young kids my seizures have gotten a lot lot worse, After this beating is when I ended up with the Todd’s Paralysis, and my seizures have been out of control even with medication. I also know with this beating I had suffered brain damage, as is not uncommon when people have seizures.

 

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Great Phonecall on Friday before Thanksgiving

  • Posted on October 6, 2012 at 7:30 pm

Well I have been waiting for anywhere from 2 to 3 years to be able to try a medication called Lyrica. I have been tried on many many medications that is suppose to help with chronic pain as well as my seizures. (as most of you know I am epileptic.) I had been denied for Lyrica once from my family doctor and disability told me that I had to try other medications that were covered with their coverage first. Well this weekend with it being Thanksgiving weekend I couldn’t have gotten a better phone call from my neuroligists office. I was sitting watching television at approximately 5:30 p.m. when my phone rang and it was Dr. Borretts office. The first thing that went through my head was ohno I missed an appointment. The secretary proceeded to tell me that they had received a letter in regards to the Lyrica that my doctor had requested I be approved for. He has it down for 2 reasons to help control my Epilepsy and to help me with my chronic pain. That was the best Thanksgiving news I could have gotten as it is finally covered and not only is it just covered for the usual 1 year , but it is covered for me for life. I am sure I was smiling from ear to ear because this is a medication that has a lot of positive feedback about it as well it is used for fibermyalga. The doctors office was going to call the pharmacy and fax them the letter for me to be able to get this new medication. Well I waited a while then I called the pharmacy and apparently they didn’t receive a prescription but they did receive a cover letter telling them that it is indeed covered now for me. I just have to be patient and wait until Tuesday due to the Thanksgiving Holiday. I am hoping that anyone that has taken Lyrica can tell me of any of their side affects or issues that any have had. Have you had good bad or indifferent experiences with this medication?

I will be letting you know how I am tolerating this medication and how my seizures as well as my Chronic Pain is. This is going to work for me as this is the last one that I have the option of trying to help me with my Chronic Pain. This Thanksgiving I have finally got great news about this medication and if / when this works I will be able to get off some of my other medications as they wont be needed anymore which makes me more than happy.

Couldn’t have had a better Thanksgiving gift than getting my Lyrica covered for life from the Section 8 for special need of a certain medication……. so yes I am very happy even though this Thanksgiving I am spending alone ( me and my cat smokey)

 

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PERFECT finally a site that wont trigger my seizures :)

  • Posted on September 19, 2012 at 3:23 am

Hey have you ever had problems finding the perfect website to buy or sell things? I always find a lot are too flashy for me and trigger my seizures… . Well if you have answered YES then I have found the site for you!

Whooooohoooooo finally a site that won’t trigger my photo epileptic seizures! This site also has online support (in a chat room ) you can go in and ask questions right there and then and the staff is more than willing to help. You can either go into flea chatters to ask your question or you can email them with the question. Everyone is very friendly without making you feel like any questions that you are asking are silly. Also due to my memory being bad from so many seizures you can ask the same question over and over again and they help you as if it was the very first time that you have asked the question. They will take as much time with you as you need and not try to rush you or avoid the questions. I am sooooo happy that I have found this site and with Christmas coming up and birthdays and the fact that I am not able to get out of the apartment very often I know where I am going to be getting a lot of my Christmas things this year as well as Birthday gifts (with hopefully the odd treat here and there for me heeheehee). They have a lot of categories to choose from and I have seen someone ask if a category can be added and they don’t have problems doing that either.

They are supportive and helpful to everyone and each month I think they are donating a certain percentage of the sites profit to a charity. There’s also a news area where they tell you what’s going on, and how to do things that show you for anyone that’s new to selling or buying things online. The method of payment is paypal as far as I know, so no credit cards are even required.

I know I will be selling anything that I decide to on here and I think its really worth going in and checking it out. They have everything from ebooks to other digital forms of selling and us females (and even guys I know where you can get the her in your life) some very nice jewelry. Also very good for any crafters out there they have beads and things for the crafters J. I have talked to the owners and they are going to be having live auctions coming too and those again won’t be flashy!

The sites name that is an awesome and very supportive of people with Epilepsy / Seizures as well as other disabilities is FleaBids Auction House @ http://fleabids.com/auction Check it out I can guarantee you will be glad you did!! I know I am super excited about it and all that it offers for everyone JJ .

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