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Donate coffee money…..

  • Posted on July 4, 2012 at 12:29 pm

As some may know Lisa (my cousin) is currently in hospital. I want to do something special for her. She really needs a window AC as this heat is really bad for her. Please donate coffee money to help raise money to cover cost and to pay the $35/mth her building charges for hydro. It was 29C in her apt today. Please help with coffee money as she is on disability and cannot afford an AC. Please send any donations through Paypal to david@dgbaker.com

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History of my health

  • Posted on June 14, 2012 at 3:49 pm

Many people suffer from depression, especially those with health issues. People that deal with health issues  deal in many different ways. I try to laugh and joke around about most of mine, for me this is a coping mechanism and not for people to think I take them lightly. I know how serious all of my health problems are and don##Q##t take chances on things. You can look at it like this the 2 different ways to deal or cope is either  to be happy or you can curl up in a corner and feel sorry for yourself and play the poor me routine.

I didn##Q##t realize just all the health issues I have had and will have for the rest of my life until I sat down and had to make a list for my new specialist. Now looking at this list I think holy cow what else could go wrong with me…… Well never mind don##Q##t answer that lol lol lol.

The list of my health issues are as follows :

Uterine Cancer (no follow up after Hysterectomy) age 24

Partial Hysterectomy at age 24

Epilepsy – Multiple classes of seizures (Started as a child)

Two operations on both knees (patella)

IBS (Irritable Bowel Syndrome)

Incontinence (tilted bladder – Bladder opening stretched 2-3 times as a child)

Gallbladder removed around age 30 (gallstones)

Appendix removed around age 15

Gangrenous removed age 15  – was wrapped around fallopian tube and ovary choking them off

Age 13 put on special diet for bowel blockage (very overly limited on what was allowed to eat)

No teeth due to extremely week enamel – cement from braces decayed the teeth – all teeth removed around age 23

Chronic Neurological Pain in Left Vulva – started by Bartholin Gland Abscess – Requiring 1 triage emergency surgery, another to remove excessive scar tissue and a 3rd to remove a small cyst on left labia

Alopecia – twice have had head hair fall out in clumps (within the past 3 years)

Todd’s Paralysis (loss of complete feeling – left arm only to total body from neck down) – 4 years ago

Vitalago – Primarily on face

Prone to infections especially in  open cuts/wounds

Have difficulty regulating body temperature a times

Cannot handle temps above 25C

Night sweats

Sleepwalking – Nocturnal Seizures (have opened/unlocked apt door and put things in the hall, put things in the fridge, have had falls that woke me up)

Barely get 3-4hrs sleep a night

Difficult to build muscle mass

Deaf in right ear – no cause known

Depression and have had suicidal thoughts in life

3 miscarriages

Open sores/wounds on legs (started as a red rash live hives, burning, hot to the touch, itchy) legs and feet blood red (Still ongoing with therapy)

Kicked in head by a cow (age 7)

Prone to falling – uncountable times of hitting head

Thyroid – had old doctor say body and brain don’t agree with each other (no clue what that meant)

Enlarged Red blood cells – no treatments given

Struck in head repeatedly with baseball while having seizure (home invasion)

Now I look at this and to be HONEST I want to cry but where will that get me right. Will it make anything better, No is the answer so laughing and joking is the way to go I believe.

The health issues that are in that list above some I have had and are gone and some I am stuck with for the rest of my life

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My need to rant and scream

  • Posted on June 3, 2012 at 7:11 pm

I just am so fed up anymore that I don’t know what is next. I have tried to laugh and joke around about my legs but I can’t as of yet. I usually joke around to deal with my health but the way I am feeling lately I have been very depressed because it seems like I get one thing started to straighten out and another thing starts up or I end up with something else.

Some people just don’t understand what I go through and some days you just want to give up. There are many days that I want to yell at the top of my lungs that NO BODY understands the hell I go through on a daily basis. I can not cook or clean up the apartment by myself and I just feel plain useless due to all of these things.

I have been all my life independent until I was beat in Brampton with a baseball bat. I was attacked in the head with the bat and ever since then my health has gone from bad to worse. I know that I am still lucky to be alive but maybe some people may be able to understand a bit better now what I go through and why lately I have gotten so discouraged and frustrated and just fed right up with everything in my daily life. I can not go out a anywhere I have to always have someone with me so I feel like a little kid needing a babysitter 24/7. Yes I have feeling in my body unlike a couple years ago, but with this pain sometimes I wish I didn’t because at least I wouldn’t feel the pain that I continue to go through.

My doctor is checking me for other health issues now as well as sending me to an Internist Doctor which are what as known as Puzzle Doctors. Their job is to explain what other doctors are having trouble explaining why. She will look at my entire health and try and find a reason for all these issues happening.

Please think of other people and try to help at least one person even if it is to make them smile as you never know how that could brighten up their day. I know if one of my online friends says “hi” I try to say hi back as soon as I can.

I have been fighting and fighting with things over my health for so long now it just makes me wonder if it is ever going to stop. You know I used to have a saying that “the Big Guy upstairs doesn’t give you more than you can handle, but I think I have had my limit and then some so I wish I would just get a break from more health issues coming out. The pain I am in constantly on a scale from 1 to 10 is usually about a 17 now and that is only from the surgery’s that went bad and the nerve damage. Then there is the pain in my legs with the burning and stinging from the nerves. I had the fan on the other day and even the little bit of wind from a fan drives me crazy with the pain in the legs. I have 2 toes that have been going numb more and more lately and when I go to the doctor again I have to tell him about this now.

I’ve had some so called “friends” make comments when I post things that are quite upsetting and have now made it that much more difficult for me to write. But a few people have said for me to continue with writing and screw everyone else. They don’t like it then they can move on.

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Venous Leg Ulcers and Home Care

  • Posted on June 3, 2012 at 7:08 pm

I have not been writing on my site lately as my health has been not the greatest, but I need to get back to writing here so here we go.    On top of ever other health issue I have, a new one has started which is starting to become by far the second most painful thing I have ever had to endure. Back in April I got what looked like hives on both my lower legs. They were very itchy and I had almost what looked like a red rash on them. Then the rash went from a rash to massive cuts and my legs were burning and stinging like they were on fire. After going to the doctor it was said that I had a blood infection which I was given 2 courses of anti-biotics for and we were bandaging the wounds. After two weeks though the wounds were getting worse and not healing, my doctor said continue bandaging and he would arrange for nursing care to come to address them. I now had what is called Venous Leg Ulcers caused by poor circulation. Venous Leg Ulcers

Not a couple days passed when my apt became grand central station. I had received a call from CCAC (Community Care Access Centre) I had done a phone evaluation with them and then it all started. I now have nurses coming in my place to change bandages every 3 days, an Occupational Therapist, and a Case worker. They have been amazing though and I am completely overwhelmed with all the support they have been giving me.

The nurses are still coming every 3 days and bandaging my legs as well as doing compression bandages on both lower legs. Every so often the “charge” nurse comes and re-evaluates everything and makes recommendations for changes to how the nurses are doing my legs.

Some really good things have come out of all this though (I know hard to believe), but the Occupational Therapist not only was there to deal with these Ulcer issues, she has been looking at my ENTIRE health and my daily living. They have been working closely with ODSP and helping to improve my daily living in any way possible. My O.T. has made the following improvements happen for me; I now have a bed-rail to help me in and out of bed, bath/shower handle that attaches to side of tub to help me in and out, these weird looking rails around the toilet so that I am not grabbing the sink to get up and down, I have a quad cane to help me get around and to steady my balance, and probably the biggest and most beneficial thing is my new lift chair. My O.T. was able to arrange for ODSP to cover $799 of the cost of a lift chair to help make me more comfortable and to help me get to a standing position. The problem is that lift chairs cost easily over $1,000+ and so we had to do come hunting for one, but David found one!! And it was just down the street from me from a place called Silver Cross. The chair was $800 and they delivered it that day for free. New Lift Chair

We are also now looking at getting other help for me with things like my Tenas (adult diapers), medical transportation for doctor appointments among other things.

I cannot express enough how much to thank CCAC, SilverCross, David and as well my ODSP worker for trying to make my life better.

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Health issues coming out of the closet.

  • Posted on March 1, 2012 at 10:28 pm

First of all I want to say I have not done any posts lately due to my health being worse since Christmas. My seizures have been off the wall and I have been dealing with the soles of my feet now having fissures. My pain has been up as well (30 on a 1-10 scale) which just makes every other issue that much worse.

Now too today’s post, which I hope everyone takes something from it.

Health Issues ARE NOT asked for NOR wanted! Society as a whole needs to grow up and start being a bit more understanding when it comes to health issues and others!! This would make the world a much better place and happier place as well!!

Today I had to deal with another person that doesn’t understand Health issues and in fact was being just plain ignorant. This person though it would be fun to them and hurtful to others to tease about a health issue. I have been struggling a long time about doing a blog on this longer than I have about my seizures because people just don’t understand and it is criticized so much.  After today though (thanks to this persons ignorance) I have the courage to talk about it here.  Incontinence isn’t just a health issue that affects the elderly or babies. It can happen to anyone, any age. I have had to wear what they call “Adult diapers” and I truly hate them being called that. To this day just call them Tenas or Depends (both are brand names), using the word “diaper” is part of the problem with the stigmatism. Anyone that knows anything about seizures knows that incontinence comes hand in hand when you have seizures.

The ignorance and intolerance felt by people with disabilities is akin to gays and lesbians in the fact we end up “staying in the closet” with regards to our health in order to avoid ridicule, humiliation, bullying, teasing etc. Well, as you can tell, I’ve had enough and I am no longer afraid to talk and speak up about my health if only in the hopes that it helps teach others and help others not to be afraid of talking about health issues. To make matters worse I also have I.B.S (irritable bowel syndrome) as well as a bladder issue that I have had since I was younger. When I was younger I had to have the opening of my bladder stretched 3 times as it didn’t grow with me. This though has caused the incontinence to be worse over the years instead of better. So, when you put all of that on top of having seizures, having to wear Depends is something I have to live with daily.

For those that have what you may call “embarrassing” health issues, DO NOT be embarrassed. There is no shame in having health issues; it is just a fact of life. With help of true friends and family I have been able to come to terms better with my own health and learn not to hide it. At times I embrace it as it has made me a better person in the fact I do not judge others for any reason. Do I wish I didn’t have these health issues? Of course!! I’d have to be insane not too, but the fact remains I have health issues, I have “disabilities”, but I also now have strength and courage to take the hand I have been dealt and use it to reach out to others and maybe give them a hand to be stronger.

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Health vs Food (Choose Health or Food)

  • Posted on February 4, 2012 at 10:32 pm

I just had to get some cream for my feet that’s not covered under O.D.S.P. and the medication for it was 70.00 and it had to be paid before I could get the medication. I have fissures on the bottom of my feet and they are bleeding and very very sore. There was NO time for getting a doctors letter for a section 8 so I had to pay for the medication out of my O.D.S.P. This in turn doesn’t leave much for my food because I pay 800.00 for rent and only get 1000.00 per month. I am so sick of struggling over things for my health and with not being able to work is very very depressing. I have many health issues and am on many medications. My doctor sent in a section 8 once already for one of the other meds that he wanted to put me on and the government DIDN‘T APPROVE IT therefore he had to find something that isn’t as good. That’s what we get for being disabled.

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The NEW “Ask ‘lil Lisa”

  • Posted on December 28, 2011 at 7:55 pm

Well after some thinking I’ve decided to start an Ask ‘lil Lisa area. I get lots of people asking me questions all the time about different health things, how to deal with situations etc… So it seems only right to share my experiences and answers with everyone.

Now I am not a doctor, I don’t have initials after my name or anything, so before using any advise whether from this site or any site, always talk to YOUR Doctor, Pharamacist, Nutritionist etc… I take no responsibilty for your health or well-being.

Now that is out of the way… what is Ask ‘lil Lisa? Well, it is what it says, if you have questions regarding things like, Epilepsy, Chronic Pain, Seizures (non-epileptic), IBS, Incontenants, Chrons, Celiac Disease, Seizure/Epilepsy medications, dealing with events in your life, or any of the like, ask me. I will give you my personal advise and in some cases my own personal experiences in dealing and coping with these issues and more.

Just click on the link at the top called “Ask ‘lil Lisa” and ask a question or read others questions and my answers.

Again, when it comes to health, always consult a real doctor before doing or changing things. Use of information on this site is meant to help inform and make it easier for you to talk to a professional about options.

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Smacked in the face again for being DISABLED and HONEST!!!!!!

  • Posted on November 17, 2011 at 10:51 pm

Smacked in the face again for being DISABLED and HONEST!!!!!!

The government has gone too far with restricting peoples meds !!!!!!!No photo I.D. No meds!!! I have found out the HARD way by calling to renew my meds! Finding out , with no previous warning by pharmacy or anything! This card in my opinion should be supplied for people on ODSP!!! Expecially because it is needed for certain meds. I have had O.D.S.P. refuse certain medications as well as items that are needed for my personal health and wellness, that are not covered under the drug plan. This is ridiculous with everything that is going on because yet again the INNOCENT and DISABLED that are TRUTHFUL are the ones being PUNISHED!!! I do not have any photo i.d. and it is very difficult for me to get out to get my meds never mind going downtown to get this card that I need. That is one thing and anyone knows that being on a tight budget, barely making it month to month the money tree out back HAS STOPPED GROWING. I am so discouraged and frusterated and upset with our GOVERNMENT as they have no clue what it is like to live the way people do that are disabled and in our situation.

My thoughts are the people that do the drugs and are addicts are going to get their drugs to feed their habit any way they can and it is going to be the innocent and the people that actually do need the meds that will suffer!!!!

Due to this being a NEW LAW. I have been on the phone with my pharmacy for a couple of days off and on now. The person that runs and is head of the pharmacy knows all my health issues and I just got off the phone yet again from them.(Not the main person) They said they can not release my meds to someone that the perscription does not belong to. I am UNABLE to get over to the pharmacy and the main person at the pharmacy knows this but now we are having another fight on our hands. Can this ever stop with the frusteration and its like if I could get there and get the meds and was fine then I wouldnt need the damn meds in the first place.

I AM SO DISGUSTED WITH THE WAY THINGS ARE RIGHT NOW IT ISNT FUNNY! THE PEOPLE THAT CANT GET OUT TO GET THEIR MEDS AND USUALLY HAVE SOMEONE PICK THEM UP, THE PHARMACY CAN NOT GIVE THEM OUT TO!!!!!!!!

 

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Everyone complained about Glee Episode

  • Posted on November 10, 2011 at 5:27 pm

Everyone complained about Glee Episode

 

I seen the latest episode of Glee and really don’t understand why everyone was so upset about it as I think it was very good showing the teens that there are pro’s and cons to teens having sex. It also had more than the sexual part of it. I found the young lad thats in the wheelchair (Artie Abrams) when he was talking it hit very very close to home. I know it is just a television show but his comments about being in the chair etc. He was explaining that with being in a chair you never feel self sufficient. Well that doesn’t just go for people in wheelchairs, it goes for other health issues as well and he couldn’t have said it better. Sometimes even just little things that you are able to do may not seem like much to others but it is a big deal. He said sometimes people worry about saying the wrong thing etc. and I do know that sometimes my friends don’t know what to say or how to say things but even a simple hello, how are you doing means more than anything. It could be when your having a bad day and it could make more of a difference than anyone realizes.

 

My 4 walls don’t talk to me very much and my cat on the other hand is too mouthy, lol lol, but a friend talking to me even bout the weather or their problems would mean so much sometimes. Sometimes I get told I am a nut, I do joke around a lot, but that is my way of coping with things when I am having rough times, may not be right, but thats how I do it.

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Cooking and Safety

  • Posted on November 8, 2011 at 10:30 pm

I LOVE to cook and haven’t been able to because of safety. There have been a few times I have ignored smokey (who is my seizure awareness cat). Also there have been times that I have thought that my stove was turned off before going to lay down and get safe, but I was too far into the start of the seizure episode. One time I was using the stove and I had thought that my stove was off, I went to lay down and when I came out of the seizure I had a plastic spatula that was too close to the burner and it was actually stuck to the burner when I came to after the seizure.

I have been using my slowcookers as well as my microwave for things when I am not able to have meals cooked for me. I feel aweful because it is not fair to someone to cook for me DAILY. It is bad when you feel like you are always having to be babysat for things. Like I have said in the beginning I love to cook and would love to be able to start cooking again, but to do that I have to get some of my other health issues under more control for example my chronic pain, swelling in legs and feet. These other health issues set off my seizures all of the time and sometimes I don’t realize how bad I actually am at times and find out later by being told. I try to do things and focus and push through when I am feeling bad instead of listening to my body and going to lay down, which I have to stop doing. I do wait too long a lot of times and after the fact is when I say ya I should have gone to lay down. I have a great cookbook that is for slowcookers which kinda gives me back that feeling of cooking (although not the same as using stove/oven lol ) it is this one, 470 Crockpot Recipes and that is what I use it has tons of recipies that are awesome. I bought it online as it is an ebook and would recommend it to anyone looking for slowcooker recipies because you can do anything in a slowcooker. It had everything from main meals to desserts, which I thought was awesome cause I didn’t know you could do desserts in a slowcooker.  This ebook has helped emensely to get me to feel a bit more self-sufficient and cook sometimes for myself. If any has issues with cooking or just likes using slow cookers than I would get this book.

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