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  • Posted on October 18, 2013 at 9:57 pm


Here I was put on a medication (patch) for my chronic pain and yes it has been working for my pain but we just have to get the proper dose of it now. I thought FANTASTIC I know that it isn’t going to take my pain down fully but at least it will cut it down to about 12 or so. Well my great luck as it is lol lol I ended up with a different form of medication the second set of patches were made by a different company, which in turn gave me sores that look like burns on my chest and shoulder. The very first patch done by the new company gave a little breakout of a rash. The second patch gave me a rash that looked like a burn on my chest. After I go to the doctor and he sees this you aren’t going to believe what happens. Just my luck and then tell me if I do or don’t have reasons to be frustrated.




This is my chest the area where the patch was. This is the rash that looks like the burn and the following few pictures are of the same areas. It is so sore there is also an area on my shoulder that is the same and very sore as well.
















df6506f8-0c65-4c9b-b449-6930a8e990feThis one is from my left shoulder.






Okay so I had a doctor appointment and the doctor says to me NOT to use that patch anymore because I am having a reaction theres something in the glue that I am allergic to. We are trying another patch with another glue that hopefully I wont have a reaction to. He gives me a prescription and it is taken to the drugstore to be filled. I am on ODSP and they cover certain medications. I got a call many hours after the prescription was taken in to be filled. They inform me that the medication is not covered and it was going to cost me 117.00 for a 2 week supply. Well obviously I tell them I can’t afford that so they cant order it. The next day both me and my cousin were on the phone to different people to get things figured out. We got things figured out by noon. Once again I am thinking okay great the new medication is going to be delivered and I will be able to get that on my arm and my pain will be brought down some. Well by the time 6p.m. comes I am starting to wonder whats going on so I phone the pharmacy and they told me the delivery person was there at that time so my medication will be here within the next 5 to 10 minutes. I’m thinking okay great (remember the time frame here it is important) and once again I sit and wait, and wait and wait, and time is dragging on and on and on, it’s about 7p.m. now so I phone them again the answer I get is OH LISA WHAT TIME DID YOU SAY YOU WANTED IT DELIVERED BECAUSE IT DIDN’T GET PUT OUT FOR DELIVERY it was still sitting in the Rexall Pharma Plus Drugmart. (I will tell you by this time I can feel my blood pressure rising and I am in a bad mood ) They were going to TRY to get in touch with the delivery person because they SHOULD be able to get back there and pick up my medication and deliver it later.

I mean we had asked before 1 oclock in the afternoon to have the medication delivered and the delivery doesnt start til about 5 or 6. When I called at 6 p.m. and they told me my medication would be 5 or 10 minutes because the driver was there at that time. Then they ask me if I could have someone come and pick it up for me, by this time I am really getting cranky and ready to rant on them so I said NO THAT’S WHY ITS SUPPOSE TO BE DELIVERED!!!!   They asked me my address (meanwhile its on the tags for my prescription, then they ask me the closest intersection, and by this time I said THE SAME AS YOURS I AM RIGHT BEHIND THE LIQUOR  STORE.

I finally got the medication but even when I got it the delivery guy was NOT very friendly he kinda slapped it quickly in my hand and took off.  I can’t get over the fact that when Nina, Mildred, and there are a few others there that I don’t have any problems but when they are not there I always have problems or issues. I usually try to deal with Mildred or Nina, and there are a few other people in that drug store that are very very good people.

Now you can make your decisions as to if I had the right to be angry or not………………………….Thanks




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Living a life with pain

  • Posted on December 12, 2012 at 5:03 am

For me I would love to have a minute , hour, or day with lessened pain. My pain on a scale from 1 to 10 is a CONSTANT 17 even with the medications I am on. When I was in the hospital I had a nurse come in and ask me a bunch of questions. She could not understand that there was nothing to see that its NERVE damage from 3 surgeries and each surgery the pain got worse. She was almost begging me to see. I had explained that with vulvodynia you can not see anything. I have been to many doctors and there is nothing that they can do for me. The pain is draining, you get so tired and it affects your full system. My heart rate has gone up because of the pain and has been very very high. There are a lot of people that don##Q##t understand what constant chronic pain is. Theres no way to explain it other than have something like a needle or pin stabbing you constantly 24/7. I would love for a Christmas gift for just a little bit of pain relief. I dont expect to get totally rid of the pain but to maybe get it down to like a 7. I do have a high pain tolerance as well I have had many doctors tell me that. Even with my legs the doctors have said a lot of people would be in constant tears but to me my vulvodynia pain is a lot worse than the leg wound pain. I would say that pain on a scale of 1 to 10 is a 4. Add both of the pains together and it is AGONY every day all day long and every night as well….. I wish some people would try to understand and quit saying OH YOUR JUST ON TOO MUCH MEDICATION that you shouldnt take the meds. Until they WALK IN MY SHOES FOR AN HOUR, AS I WOULDNT WANT ANYONE TO HAVE THIS PAIN NOT EVEN MY WORST ENEMY.

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A Rough Day

  • Posted on November 29, 2011 at 7:24 pm

A Rough Day!

Got up this morning and was suppose to go to the doctors. I had rested yesterday as I was not having a good day. Therefore I thought that if I rested yesterday I would be able to go today, but I was wrong.lol lol I woke up having another rough day therefore staying put at home where I am safe from anything happening out in public. I have had things happen in public and was by myself and was not treated very good.I can rest again all day, and hopes that the doctor understands, that there are just some days that I can not make it to appointments. I still am a bit dizzy and have also found out that one of my warning signs for seizures is my body temperature seems to go really low and and I freeze. When I start to freeze I have to lay down and that was the way I was all day yesterday and so far today my body temp has gone from one extreme to the other. I need not mention my pain on a daily basis because that has just come to something that I have to deal with. I can’t control that it is just something that’s there and on a scale from 1 to 10 like they ask you at doctors its like a 30 at all times. That alone makes my body temperature go up and my heart rate race. Today I just lay on the couch or if it gets too out of control I go to bed. I try to do a few things around the house but today I am not sure of what is going to get done. I know what I do WANT to do but not sure what I CAN do today

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New forum open now

  • Posted on October 3, 2011 at 8:32 pm

I have had several people ask about a forum on my site. Well, after searching for a half descent one, I have it now. Notice on the top menu line near the right side you will now see an option to the forum.

I invite anyone and everyone to share in the forum their experiences, thoughts, helpfull advise or whatever. By us all talking about our health we can help each other not feel so alone as we do sometimes.

Join the Forum discussion on this post

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