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Venous Leg Ulcers and Home Care

  • Posted on June 3, 2012 at 7:08 pm

I have not been writing on my site lately as my health has been not the greatest, but I need to get back to writing here so here we go.    On top of ever other health issue I have, a new one has started which is starting to become by far the second most painful thing I have ever had to endure. Back in April I got what looked like hives on both my lower legs. They were very itchy and I had almost what looked like a red rash on them. Then the rash went from a rash to massive cuts and my legs were burning and stinging like they were on fire. After going to the doctor it was said that I had a blood infection which I was given 2 courses of anti-biotics for and we were bandaging the wounds. After two weeks though the wounds were getting worse and not healing, my doctor said continue bandaging and he would arrange for nursing care to come to address them. I now had what is called Venous Leg Ulcers caused by poor circulation. Venous Leg Ulcers

Not a couple days passed when my apt became grand central station. I had received a call from CCAC (Community Care Access Centre) I had done a phone evaluation with them and then it all started. I now have nurses coming in my place to change bandages every 3 days, an Occupational Therapist, and a Case worker. They have been amazing though and I am completely overwhelmed with all the support they have been giving me.

The nurses are still coming every 3 days and bandaging my legs as well as doing compression bandages on both lower legs. Every so often the “charge” nurse comes and re-evaluates everything and makes recommendations for changes to how the nurses are doing my legs.

Some really good things have come out of all this though (I know hard to believe), but the Occupational Therapist not only was there to deal with these Ulcer issues, she has been looking at my ENTIRE health and my daily living. They have been working closely with ODSP and helping to improve my daily living in any way possible. My O.T. has made the following improvements happen for me; I now have a bed-rail to help me in and out of bed, bath/shower handle that attaches to side of tub to help me in and out, these weird looking rails around the toilet so that I am not grabbing the sink to get up and down, I have a quad cane to help me get around and to steady my balance, and probably the biggest and most beneficial thing is my new lift chair. My O.T. was able to arrange for ODSP to cover $799 of the cost of a lift chair to help make me more comfortable and to help me get to a standing position. The problem is that lift chairs cost easily over $1,000+ and so we had to do come hunting for one, but David found one!! And it was just down the street from me from a place called Silver Cross. The chair was $800 and they delivered it that day for free. New Lift Chair

We are also now looking at getting other help for me with things like my Tenas (adult diapers), medical transportation for doctor appointments among other things.

I cannot express enough how much to thank CCAC, SilverCross, David and as well my ODSP worker for trying to make my life better.

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  • Posted on January 13, 2012 at 8:13 pm

I have been talking to people lately and have heard some truely AWEFUL THINGS that they have been through!!!!!  I know one personally and they went to a foodbank in Ontario to get help with food for the month and were turned away because they were told that they make too much money.

This person lives alone and is on DISABILITY!!!  This person is on ODSP. Please tell me how in the hell they can be turned away and told that they make too much money on DISABILITY!! I can not believe this. I am going to be doing some research on foodbanks and trying to find out how they can turn a person away that doesn’t waste money on booze, illegal drugs, this person doesn’t spend money on things that they don’t need. They have not gone to foodbanks unless they need to as they know that there are others out there with children that need the food and they just have finally agreed that they need the help. They would rather NOT eat than go to a food bank to take from others and then this happens. This just shows another way that things are screwing the people that need the help and are not getting any help that they need. They finally agree to get more help and get REFUSED.

Please also sign the petition for fixing Disability (ODSP). http://stopthepoverty.com/petitions/raise-the-rates-campaign/

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Sentenced to life

  • Posted on November 4, 2011 at 2:15 pm

So, my rent is going up and its due to hydro etc going up so much, the government has to think about this with the people on disability as I have already given up my housephone to try to cut my costs and there is no other way i can cut costs.  I don’t get out and my only social life is the computer and people that I have met online. I talk to my friends this way and if I cut my internet I will not have any social life and this is not fair to people on disability.

I am not just speaking for me but for everyone on disabilitiy that are in the same position as I am that have cut costs every where they can to make things better. I am paying 824.00 now for my rent alone and only get 464.00 as my allowance for rent, anything above that comes out of my liviing expenses. I am not able to walk very far and have other health issues as I have written on my blogs. I have been trying to cope as is and this raising my rent just makes me want to put up my hands and say now what am i going to do.

A lot of people would say well why not move then to a cheaper apartment. What they don’t understand is then I would have to get a moving company to help me move and where am I going to go, and to be able to find a place that is safe and close enough to all the grocery stores, as well as the drug store. I have it right by me because as it is now I can never go out by myself and when I do go out I have to use a walker a lot of the time. I do not expect to have a luxurious life as I know it comes from the government but would like enough money each month to buy groceries and to pay for my expenses. I do not get other personal items covered by the ODSP in which I need as it is. Therefore need to save the money I have to last til the end of the month for special items that I need. I have sent away for samples of things to help me and do use coupons when I can.

I feel at times like I am being punished for being disabled, almost like being in a jail as all I get to see is the same 4 walls. I do have a cat and my cat is an epilepsy awareness cat. I do not have enough money per month to pay my bills and believe me I don’t have anything extravagant, and don’t expect an extravagant lifestyle, but I do think that I should be able to pay my bills and buy enough food to last me a month, as well as my other personal health issues requirements. I would even love to have the other issues added to the drug card as this would help me. I do not spend my money on things that are not needed to live. This month for example, I was looking to get a descent grocery shop as am very low on food. My groceries this month I was only able to spend not even 40.00 for groceries…Now how does that last a month!!!!!!!

I’ve been looking at the food bank, BUT because I cannot get out easily it is not an option as the don’t deliver and for me to get there is not feasible. Let alone also the cost of the TTC to do it, which I have to save every penny I can for travelling to doctor appts which is not a fun time, but that’s another story I will be writing about.

So here I am, sentenced to life.


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Government Launches Review of the Registered Disability Savings Plan

  • Posted on November 4, 2011 at 1:26 pm

On Oct 23rd 2011 the Honorable Jim Flaherty announced a Federal review of the RDSP program. In this they have asked for people to comment on it. Below is the email I sent with regards to the RDSP review.


I am a family member of persons on Ontario Disability. First let me state that I think the RDSP is a great idea but I do and have seen the following issues;

1. A lot of people on disability do not have enough ID for banks to even open an account (seen this with BMO and my cousin). My cousin does not have a drivers license (can’t), does not have a passport, and still has the red/white ohip card. She does not have any form of “legal” photo ID. This needs to be addressed on many government levels. A nationwide government issues photo disability ID needs to be developed.

2. The vast majority of people on disability are afraid of losing or having their provincially provided disability cut for having the RDSP. Even though this would not happen, the government needs to understand one very crucial thing. The workers/staff of things like ODSP go out of their way to make people on disability afraid of being cut-off. This is not an exaggeration as I have seen this first hand with several family members and friends on ODSP. I know my cousin is very scared of opening an RDSP as the prospect of losing her ODSP frightens her to death.

3. People on ODSP for example don’t have money to contribute to RDSP and here is why. For people like my family living in Toronto – (courtesy CHMC Rental Market Reports – 2010)
Average Rent in Toronto
Bachelor Apt – $758/mth
1 Bdrm Apt – $926/mth
ODSP benefits for a single person: $930/month – That includes $464 for shelter.
**As of Jan 2012, my cousins rent for a 1 Bdrm is going up to $824/mth they say due to higher hydro costs etc… YET her ODSP does not increase to cover this. How can that be fair or right?

As you can see people on disability don’t even have enough money to get by each month. This is a MAJOR issue that needs Government attention.

Even though the RDSP is a wonderful thing to have, a lot of people on disability can’t and won’t take advantage of it for several reasons. Disability as a whole needs to be addressed as a National issue. I would request that the Honorable Jim Flaherty look at making Disability a Federal issue to be dealt with and removed from the Provinces. Each province deals with disability differently while the persons in Canada with disability are no different province to province. Our great Country is a Country that prides itself on helping other countries with their impoverished, yet we ignore our own that desperately need our help. Our disabled did not ask to be disabled nor do they wish to be disabled, yet we treat them like some blithe on our system. Unlike Welfare recipients our disabled have no choice BUT to be on assistance as most cannot work anywhere. I would like to put a challenge to our leaders – to ensure all people on disability in all provinces get at the very least the same amount of money as a Minimum Wage 35.5hr/wk worker gets and fix their health care and special diets/needs allowances. Is our government aware that because someone is on disability they are not entitled to the same health care as everyone else? This is backed up in facts, for example, certain meds that would help people in my family lead a more normal life they cannot get because ODSP refuses to cover it.

I applaud Mr. Flaherty for what he is trying to achieve, but I feel there are some glaring fundamental issues that need to be addressed before the RDSP program can work properly.

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