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Seizures and How they affect you….

  • Posted on December 19, 2012 at 5:13 am

Im Brittany im 20 years old and im Lisa’s daughter, growing up i had seizures….. And watching what my mother went through was pretty rough to, alot of stuff has happened in her past, making her seizures alot worse then they used to be, my last seizure i had was in grade 7. I do not remember much except, being made fun of alot, getting pulled out into the hall way in the middle of the class and having a mini seizure, Kids and People in general can be very very cruel…

Brittany

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Getting ready for November

  • Posted on October 30, 2012 at 5:15 pm

Getting ready for November

Ok we have to start Raising Awareness for Epilepsy. I am going to tell you a few things that have happened to me. I am not doing this for anyones sympathy or anyone to say that I want any attention because this is NOT the reason I am doing this. I have thought the best way to start to kick off November even though it’s a bit early is I am going to tell you a few things that have happened to me.

 With any hit in the head a person that has Epilepsy even if they have not had seizures before this a hit to the head can cause seizures to become active. If a person has a single seizure they don’t necessarily need an anticonvulsant. Usually doctors will put a person on an anticonvulsant medication after  a few seizures also some tests for example, an eeg catscan or mri. This is what I have been told by my neurologist.

When I was young we lived on a farm and I used to go out and help in the barn. I was not afraid of any of the cows, bulls etc. I was helping milk the cows and there were a couple of cows I was always allowed to milk by hand. We had a little stool and bucket and I would sit and milk the cow. Well as you can probably guess we either picked the wrong cow or she just didn’t want me to milk her this day, She brought up her back leg and I got a good swift kick in the head. Well the stool went one way and I went the other. I landed right in the gutter. Man oh man it stunk, everyone was in the house and they locked me out of the house once they made sure I wasn’t severely hurt other than having a nice sized goose egg on the side of my head and smelling from head to toe. My family got out the good old garden hose and hosed me down then I could go into the house and have a bath. Imagine the force that a huge cow had to kick me in the side of the head by the temple and leave a goose egg and very bad bruising .

I laugh about being kicked in the head now because I could just picture what I looked like after I was helped up and back to the house .

The second thing that I am going to tell you is a very serious head injury I had received.  I was living in Brampton and had been down to visit my grandmother who was going blind and needed someone to help her with things. I  had gone home layed down on the couch and had a few seizures. I remember starting to come out of the seizure and when I opened my eyes my cat was on the arm of the couch and all I could hear him doing was growling.  I then looked the way he was looking and growling. There were 3 young boys that had broke into my apartment and they had a baseball bat with them. The next thing I know I was getting beat with the bat. It seemed like the beating was going on forever I had massive bruising all over my face, head and arms. I was in total shock not to mention still being in the fog of coming out of seizures. Since I was beat with the bat in the head by the young kids my seizures have gotten a lot lot worse, After this beating is when I ended up with the Todd’s Paralysis, and my seizures have been out of control even with medication. I also know with this beating I had suffered brain damage, as is not uncommon when people have seizures.

 

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Great Phonecall on Friday before Thanksgiving

  • Posted on October 6, 2012 at 7:30 pm

Well I have been waiting for anywhere from 2 to 3 years to be able to try a medication called Lyrica. I have been tried on many many medications that is suppose to help with chronic pain as well as my seizures. (as most of you know I am epileptic.) I had been denied for Lyrica once from my family doctor and disability told me that I had to try other medications that were covered with their coverage first. Well this weekend with it being Thanksgiving weekend I couldn’t have gotten a better phone call from my neuroligists office. I was sitting watching television at approximately 5:30 p.m. when my phone rang and it was Dr. Borretts office. The first thing that went through my head was ohno I missed an appointment. The secretary proceeded to tell me that they had received a letter in regards to the Lyrica that my doctor had requested I be approved for. He has it down for 2 reasons to help control my Epilepsy and to help me with my chronic pain. That was the best Thanksgiving news I could have gotten as it is finally covered and not only is it just covered for the usual 1 year , but it is covered for me for life. I am sure I was smiling from ear to ear because this is a medication that has a lot of positive feedback about it as well it is used for fibermyalga. The doctors office was going to call the pharmacy and fax them the letter for me to be able to get this new medication. Well I waited a while then I called the pharmacy and apparently they didn’t receive a prescription but they did receive a cover letter telling them that it is indeed covered now for me. I just have to be patient and wait until Tuesday due to the Thanksgiving Holiday. I am hoping that anyone that has taken Lyrica can tell me of any of their side affects or issues that any have had. Have you had good bad or indifferent experiences with this medication?

I will be letting you know how I am tolerating this medication and how my seizures as well as my Chronic Pain is. This is going to work for me as this is the last one that I have the option of trying to help me with my Chronic Pain. This Thanksgiving I have finally got great news about this medication and if / when this works I will be able to get off some of my other medications as they wont be needed anymore which makes me more than happy.

Couldn’t have had a better Thanksgiving gift than getting my Lyrica covered for life from the Section 8 for special need of a certain medication……. so yes I am very happy even though this Thanksgiving I am spending alone ( me and my cat smokey)

 

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PERFECT finally a site that wont trigger my seizures :)

  • Posted on September 19, 2012 at 3:23 am

Hey have you ever had problems finding the perfect website to buy or sell things? I always find a lot are too flashy for me and trigger my seizures… . Well if you have answered YES then I have found the site for you!

Whooooohoooooo finally a site that won’t trigger my photo epileptic seizures! This site also has online support (in a chat room ) you can go in and ask questions right there and then and the staff is more than willing to help. You can either go into flea chatters to ask your question or you can email them with the question. Everyone is very friendly without making you feel like any questions that you are asking are silly. Also due to my memory being bad from so many seizures you can ask the same question over and over again and they help you as if it was the very first time that you have asked the question. They will take as much time with you as you need and not try to rush you or avoid the questions. I am sooooo happy that I have found this site and with Christmas coming up and birthdays and the fact that I am not able to get out of the apartment very often I know where I am going to be getting a lot of my Christmas things this year as well as Birthday gifts (with hopefully the odd treat here and there for me heeheehee). They have a lot of categories to choose from and I have seen someone ask if a category can be added and they don’t have problems doing that either.

They are supportive and helpful to everyone and each month I think they are donating a certain percentage of the sites profit to a charity. There’s also a news area where they tell you what’s going on, and how to do things that show you for anyone that’s new to selling or buying things online. The method of payment is paypal as far as I know, so no credit cards are even required.

I know I will be selling anything that I decide to on here and I think its really worth going in and checking it out. They have everything from ebooks to other digital forms of selling and us females (and even guys I know where you can get the her in your life) some very nice jewelry. Also very good for any crafters out there they have beads and things for the crafters J. I have talked to the owners and they are going to be having live auctions coming too and those again won’t be flashy!

The sites name that is an awesome and very supportive of people with Epilepsy / Seizures as well as other disabilities is FleaBids Auction House @ http://fleabids.com/auction Check it out I can guarantee you will be glad you did!! I know I am super excited about it and all that it offers for everyone JJ .

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Health issues coming out of the closet.

  • Posted on March 1, 2012 at 10:28 pm

First of all I want to say I have not done any posts lately due to my health being worse since Christmas. My seizures have been off the wall and I have been dealing with the soles of my feet now having fissures. My pain has been up as well (30 on a 1-10 scale) which just makes every other issue that much worse.

Now too today’s post, which I hope everyone takes something from it.

Health Issues ARE NOT asked for NOR wanted! Society as a whole needs to grow up and start being a bit more understanding when it comes to health issues and others!! This would make the world a much better place and happier place as well!!

Today I had to deal with another person that doesn’t understand Health issues and in fact was being just plain ignorant. This person though it would be fun to them and hurtful to others to tease about a health issue. I have been struggling a long time about doing a blog on this longer than I have about my seizures because people just don’t understand and it is criticized so much.  After today though (thanks to this persons ignorance) I have the courage to talk about it here.  Incontinence isn’t just a health issue that affects the elderly or babies. It can happen to anyone, any age. I have had to wear what they call “Adult diapers” and I truly hate them being called that. To this day just call them Tenas or Depends (both are brand names), using the word “diaper” is part of the problem with the stigmatism. Anyone that knows anything about seizures knows that incontinence comes hand in hand when you have seizures.

The ignorance and intolerance felt by people with disabilities is akin to gays and lesbians in the fact we end up “staying in the closet” with regards to our health in order to avoid ridicule, humiliation, bullying, teasing etc. Well, as you can tell, I’ve had enough and I am no longer afraid to talk and speak up about my health if only in the hopes that it helps teach others and help others not to be afraid of talking about health issues. To make matters worse I also have I.B.S (irritable bowel syndrome) as well as a bladder issue that I have had since I was younger. When I was younger I had to have the opening of my bladder stretched 3 times as it didn’t grow with me. This though has caused the incontinence to be worse over the years instead of better. So, when you put all of that on top of having seizures, having to wear Depends is something I have to live with daily.

For those that have what you may call “embarrassing” health issues, DO NOT be embarrassed. There is no shame in having health issues; it is just a fact of life. With help of true friends and family I have been able to come to terms better with my own health and learn not to hide it. At times I embrace it as it has made me a better person in the fact I do not judge others for any reason. Do I wish I didn’t have these health issues? Of course!! I’d have to be insane not too, but the fact remains I have health issues, I have “disabilities”, but I also now have strength and courage to take the hand I have been dealt and use it to reach out to others and maybe give them a hand to be stronger.

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T.V. show Glee makes light of Epilepsy

  • Posted on February 28, 2012 at 7:08 pm

I’ve had Epilepsy for nearly 40 years and was appalled when a episode of Glee in Feb 2012 did a reference to faking seizures. In a scene trying to stop the wedding of two of the ‘kids’ on the show, the charactor played by Jeff Goldblum made a reference to buying time by faking an Epileptic Seizure.  What made matter worse was the theme of the episode was all about intollernce and acceptance. The moral of the story it seemed was accept others for the way they are, but if they have epilepsy it is still ok to poke fun of seizures. As I’ve stated before Epilepsy is a very serious illness and not one to be taken lightly. In Canada here we are passing a bill for Epilepsy Awareness which I hope some day will make people more aware of how serious it can be.

A lot of people think Epilepsy is a joke as they only see Gran Mal seizures in movies and online. There are over a dozen of high level type seizures with many different forms under that.  I sincerly hope there will be a time when we stop making light of epilepsy and seizures.

I will admit I do/did love the show Glee, but I am now questioning whether or not to continue watching it in light of this episode.

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Welcome to December!

  • Posted on December 1, 2011 at 8:28 pm

Welcome to December!
I would like to welcome everyone to December. This is a great month with Christmas and everything families getting together, celebrating the holidays and the New Year sneaking right around the corner. I would like to let everyone know how December affects me. You know the song “I wear my sunglasses at night” lol lol well that’s me cause I have to wear my sunglasses due to Christmas lights. Ya I know the nut in me is coming out again trying to joke around about my seizures, but hey what can you do you either have to make the best of it or be all down in the dumps. Believe me I do get down because this time of year I have to be very careful of going out, even in the apartment building I live in they have the flashing Santa on the door to outside and in the lobby windows. Therefore when going out I have sunglasses on and have to also close my eyes and be led outside lol lol lol….  Everyone that has the Christmas lights flashing etc. which makes it very hard on me, as well as others. I have some great friends tho that when I do go out they make sure that there are no flashing lights around me. Well other than camera’s but they have even asked people to be careful of their flashes because we all know that this time of year that’s another thing that people love to do. I am guilty of taking a ton of pictures too but I can never use a flash lol lol.

Please note that my joking about this (seizures) and me having seizures and epilepsy is only my way of dealing with it. By any means seizures is not a joking matter and is quite serious.

How about this December think about some other people with different health issues when putting your outside lights on and maybe for one year don’t have the flashers on?

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A Rough Day

  • Posted on November 29, 2011 at 7:24 pm

A Rough Day!

Got up this morning and was suppose to go to the doctors. I had rested yesterday as I was not having a good day. Therefore I thought that if I rested yesterday I would be able to go today, but I was wrong.lol lol I woke up having another rough day therefore staying put at home where I am safe from anything happening out in public. I have had things happen in public and was by myself and was not treated very good.I can rest again all day, and hopes that the doctor understands, that there are just some days that I can not make it to appointments. I still am a bit dizzy and have also found out that one of my warning signs for seizures is my body temperature seems to go really low and and I freeze. When I start to freeze I have to lay down and that was the way I was all day yesterday and so far today my body temp has gone from one extreme to the other. I need not mention my pain on a daily basis because that has just come to something that I have to deal with. I can’t control that it is just something that’s there and on a scale from 1 to 10 like they ask you at doctors its like a 30 at all times. That alone makes my body temperature go up and my heart rate race. Today I just lay on the couch or if it gets too out of control I go to bed. I try to do a few things around the house but today I am not sure of what is going to get done. I know what I do WANT to do but not sure what I CAN do today

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Seizures and Television

  • Posted on November 28, 2011 at 2:17 am

I would like for everyone to get a list together to warn others about television shows that cause seizures. I have started with making some television shows that have bothered me, they are the following :
– entertainment tonight,
– flashpoint at the very beginning
– any award shows
– there have been episodes of house
– the beginning of big bang theory
– the movie twister as well as others with a lot of flashes in them.
– sometimes the beginning of the hockey games due to flashing lights more for awards etc.
– also there are a lot of commercials

I will be adding more as I think of them and I hope that other people will also do the same. With enough people doing this maybe some television stations etc. will take things into consideration when doing shows and making commercials as well as shows.

I would love to be able to watch award shows just like anyone else.

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Cooking and Safety

  • Posted on November 8, 2011 at 10:30 pm

I LOVE to cook and haven’t been able to because of safety. There have been a few times I have ignored smokey (who is my seizure awareness cat). Also there have been times that I have thought that my stove was turned off before going to lay down and get safe, but I was too far into the start of the seizure episode. One time I was using the stove and I had thought that my stove was off, I went to lay down and when I came out of the seizure I had a plastic spatula that was too close to the burner and it was actually stuck to the burner when I came to after the seizure.

I have been using my slowcookers as well as my microwave for things when I am not able to have meals cooked for me. I feel aweful because it is not fair to someone to cook for me DAILY. It is bad when you feel like you are always having to be babysat for things. Like I have said in the beginning I love to cook and would love to be able to start cooking again, but to do that I have to get some of my other health issues under more control for example my chronic pain, swelling in legs and feet. These other health issues set off my seizures all of the time and sometimes I don’t realize how bad I actually am at times and find out later by being told. I try to do things and focus and push through when I am feeling bad instead of listening to my body and going to lay down, which I have to stop doing. I do wait too long a lot of times and after the fact is when I say ya I should have gone to lay down. I have a great cookbook that is for slowcookers which kinda gives me back that feeling of cooking (although not the same as using stove/oven lol ) it is this one, 470 Crockpot Recipes and that is what I use it has tons of recipies that are awesome. I bought it online as it is an ebook and would recommend it to anyone looking for slowcooker recipies because you can do anything in a slowcooker. It had everything from main meals to desserts, which I thought was awesome cause I didn’t know you could do desserts in a slowcooker.  This ebook has helped emensely to get me to feel a bit more self-sufficient and cook sometimes for myself. If any has issues with cooking or just likes using slow cookers than I would get this book.

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