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Explanation of Vicious Cycles

  • Posted on November 7, 2011 at 11:24 pm

I am not writing these for pity from anyone or to have anyone feel sorry for me but to try to have people understand how things are and how things interact with health issues

There are so many things that people do not realize when it comes to health issues making like a vicious circle. Last night I was laying watching television, and the tv made a loud sound. I inturn jumped and then that made the pain increase over another 10 times. As most of you know I have epilepsy and when my pain increases from the vulvodynia that sets off the seizures, but last night the pain increased so much that it actually made me sick to my stomache as well as it set off my I.B.S. I had taken my pain meds and had to try to take gravol to try to settle my stomache as well. When the seizures happen your body Is like dead weight therefore things just go from bad to worse. I today have been trying to recover from not only from the seizures but trying to get the pain back somewhat under control. I am on medication daily for the pain and I have never had the experience of being sick to my stomach over the pain. I have had my heart rate increase due to the pain and it also causes me to sweat profusely.

The pain increase set off my seizures and with that I couldn’t situate myself properly the way I usually do when sleeping. I usually have to sleep with 2 pillows between my legs as the pain is unbearable if I don’t and then the pain meds can not keep up with the pain to try to help keep the pain a bit down. Therefore a little thing like a loud noise can cause me to jump and tense up and that increases the pain. You don’t realize how many things can be affected by one health issue. I never did realize how 1 thing can affect others. Today I was out of it for over 12 hours and most people would say well why are you complaining.

If I was just sleeping it would be great, the thing is I WASN’T just sleeping I was having constant seizures due to the pain, When I finally came out of the seizures I had to immediately try to get the pain down a bit or the cycle would continue. I am sore from the seizures (which is normal after having seizures).

Trying to get the pain down a bit to where it normally is and have my system relax and stop my heart rate from being up as well as the sweating from the pain is NOT easy. Pain itself makes you tense, and when you have other things going on it makes it 10 times worse.

 

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Battle of the Blades – Supporting Epilepsy

  • Posted on September 26, 2011 at 2:10 pm

I was watching Battle of the Blades last night and saw that Boyd Devereaux is Skating to support Epilepsy Huron-Perth-Bruce. It is nice to see that someone is skating to help support Epilepsy so whoever knows anyone who has Epilepsy or seizures please go to the site and vote to keep them on. The following link is where you can go to vote and show support for them to keep them on the show so they get the money that is donated if they win. http://www.cbc.ca/battle/index.html but it looks like the voting is done for this week. Please remember to look it up and to vote as to raise awareness and help donate to Epilepsy Huron- Perth- Bruce.

This season is a sad way to start with the death of Wade Belak as he was going to be in this seasons Battle of the Stars. The hockey players this year are going to have a hard time keeping up with the last season as they were fantastic skaters and did amazing things.

Please remember to vote for Boyd Devereaux and his partner at http://www.cbc.ca/battle/

About Epilepsy Huron-Perth-Bruce
Epilepsy Huron-Perth-Bruce is a health organization dedicated to promoting independence and optimal quality of life for children and adults living with seizure disorders. They raise awareness of epilepsy, conduct research and offer information, support services, advocacy and education.

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Seizure Awareness Cat

  • Posted on September 18, 2011 at 9:39 pm

Yes that title is correct. I have a seizure awareness cat.

I know that there are some people out there that are not going to believe what I have to say about my cat and I consider myself very very lucky to have a cat that warns me of my seizures. I do have many health issues and my cat is very smart and seems to know when I am in rough shape and sticks to me like a dog on a leash. He will walk a couple of steps then turn around and look at me to make sure I am still listening to him and following him.

I have had my cat since he was a kitten. He is now about 6 or 7 years old and he warns me when I am going to have seizures. I have had times that I have ignored him and he comes to me and wont stop meowing, jumping up on me and smacking me until I go and sit down. At first I didn’t realize what he was doing but after a while we put it together and when he comes to me like that I usually have to listen to him as that means there is a seizure coming. Unfortunately I don’t usually have an Aura to warn me so he is my living Aura. He has had no training to do any of this but has just picked this up and done it automatically. I have been standing in the kitchen at times and he will come in and grab me or smack me, he’s never too rough but he doesn’t give up until I listen to what he is trying to tell me. If I have fallen he stays with me or is with me again when I wake up. I know some skeptical people are going to say THERES NO WAY HE DOES THAT and he doesn’t warn you about seizures but it is true. I have many family members as well as friends that have seen him and what he does…… also if I wait too long and don’t make it to the couch or bed and end up on the floor when he hears someone coming in the apartment he will go to meet them meowing his head off and lead them right to where I am on the floor. I was not aware of this but have had my family and friends tell me about this.

I consider myself very very lucky to have a cat that can tell somehow, whether its instincts or what I have no clue but he does and now I am getting used to listening to him as he has saved me many many times from being hurt seriously. He also will get up and lay on my legs so that I can not get up if he thinks I am not going to listen to him and going to get up.

When I have company its like my cat says “okay I have time to myself” and he goes and does his own thing, but my close family and friends have seen incidents and if I am on the phone and the cats crying etc my family will say “YOU BETTER GO AND RELAX” because they know that he is telling me to!!!!

Anyone that says animals can’t tell are wrong! I have a cat that can tell when people are sick and when I am going to have seizures as well as when my other health issues are bothering me. He is my pet, my health alert, and my savior. He is Smokey…..

Seizure Aware Cat

Seizure Aware Cat

 

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Dr. Phil show with the Anthony’s – Appalled!!!!!

  • Posted on September 14, 2011 at 8:54 pm

I was watching the Dr. Phil interview with the Anthony’s and really could not believe that the mother brought up that their daughter had a grand mal seizure the night she got out of jail. She is really in denial and trying to make people think that because their daughter had a grand mal seizure this would make her do the things that she did to her daughter, that dear little child. I am a mother of 2 and have Epilepsy and have never ever thought of doing any such thing to my children. This in my opinion is going to make people totally afraid of anyone with epilepsy as they were many many years ago. We have worked so hard to have the public know that just because we have seizures we do not harm people. Do cancer patience hurt other people that don’t have cancer NO and this is a backslide for anyone with EPILEPSY.!!! Pleasse see the facebook listing as well that there was a doctor talked to and he also says that there is no reason to believethat.

I have had epilepsy since I was younger and don’t have any criminal record , nor have I lashed out because of a seizure etc so please do not believe that statement that Cindy Anthonymade on the Dr.Phil show .  I also wrote into the message boards as this is something I personally feel is not going to do good for anyone with Epilepsy. I have had many people turn against me because they didnt understand it and thats what we are all trying to do, is to make awareness and make people NOT be afraid but raise POSITIVE awareness.

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