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My Story / Experience with Vulvodynia

  • Posted on October 24, 2011 at 5:51 pm

I spent a month in the hospital due to my epilepsy and while I was there I ended up getting a Bartholin’s gland abscess and the hospital made me wait for a full week while the abscess got worse and worse. The Toronto Western Hospital did not have a gynecologist and had to ship me to another hospital. They didn’t do anything until I was going to sign myself out of the hospital after exhausting every other avenue. I had begged, pleaded with the doctors and nurses there. I do have to say that there was a nurse that once she seen the size of the abscess she couldn’t believe it and actually after her shift was over she phoned to see how I was doing. I was sent over to Mount Sinai Hospital by taxi with my medical records.Once I got to Mount Sinai my heart rate was up, as well as my blood pressure, due to pain and the actual gynecologist said that they had never seen an abscess that large as it was the size of a baseball and they had to do the surgery in the triage of the emergency room. It had started to bleed a bit and was going to explode. They did the surgery and had to make 2 incisions as couldn’t get it completely drained with the first incision. They packed it and then sent me back to The Toronto Western Hospital. I had to take the packing out the next day and the hospital had me remove it myself. My sister tried to help remove it the next day but the packing got stuck and she was afraid to hurt me so I ended up removing it, without the help of any nurse. The stitches started breaking the day the packing was taken out. I didn’t have to go back to see how things were healing.

Since then I have had 3 surgeries in 1 year and have had daily pain 24/7. The pain on a scale from 1 to 10 is about a 30. I also have seen many many doctors and actually had one doctor that was very ignorant. This one doctor from Mount Sinai said to me “there’s nothing there I can hack away at your vagina if you want” . Once he said that to me I immediately said that I was leaving the hospital and he wasnt TOUCHING ME!!!!

I have been seeing a doctor that I would highly recommend. Her name is Dr. Roberts from Toronto. She is very understanding and she has said to me that she is NOT going to put me through anymore pain. She has recommended me to go to the pain clinic that is covered under ohip.

I have been put on 2 medications one is Gabapentin and Cymbalta . I have had to stop the Cymbalta as one of its side affects is it can cause hair to fall out and I have had to shave my head as I was having clumps of hair fall out and had many bald spots again.

This has been a long hard process. I have been suffering in pain daily for over 3 years now. The doctors are now saying that I have Vulvodynia. I have found many support forums and have joined this one Vulvodynia Support

I have had the nerves damaged and which in turn has caused the pain. The nerves were damaged from the first surgery and with having so many surgeries in such a short period of time. Now I just have to learn to live with the pain.

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